Hello :-)

[Mark-duthoit-76]

Hello,

I have just joined and wanted to introduce myself. I have Chiari Malformation, Syringomyelia and Hydrocaphulus

[Kirk5w7]

Hi Mark welcome,

Ive just looked up the conditions you have and they must be challenging for you.

How well do you cope, what are your challenges?

Youll find us a friendly bunch, good to have you amongst us.

Janet x

[Ruminata]

Newbie myself here and still finding my feet after recent SAH.

Welcome Mark.

[TurtleRicky]

Hello, Mark thank you for introducing yourself that gave me a lot to think about. This forum is a place of relief for me. I look forward to all the new posts because... because so many reasons. Ill be in hospital soon and one of my top goals is to get home and see this forum again.

[cat3]

Hi Mark and welcome. Please tell us a little bit more about your (complex sounding) issues and how they impact on your daily life.

I had a brain haemorrhage 6 years ago so pretty straightforward, though the after effects have been life-changing. Look forward to hearing more from you................... Cat x

[Daveeba]

Phew Mark, I'm glad I haven't got that. As it is, with epilepsy I've very often got a chewed up tongue, but having to say all of that I'd more than likely swallow it. I thought I was bad enough with Axonal Sensory Peripheral Neuropathy. Good luck Mark, and stay as well as you can. Dave

[lcd8]

Hi Mark. I don't have your first 2 conditions but I do suffer from Hydrocephalus and have lived with a VP Shunt (revised 4 times) for 30 years now. Do you have a Shunt?

[Mark-duthoit-76 in reply to lcd8]

I've got a VP shunt

[lcd8]

Welcome to the club. Has the Shunt resolved some of your problems for now? I get hydrocephalus because I have a cerebellar Arteriovenous Malformation that blocks the normal exit routes for CSF. I only know about the AVM because it caused the hydrocephalus.