We all talk about similar symptoms and you'll meet people at your Headway meetings who understand what you're talking about. However I've yet to meet anyone who has one of mine.
It shows itself in busy visual environments such as large department stores and out walking with fairly busy traffic. I begin to feel detached from the outside and my perception of distance and time become distorted.
It's important that I self monitor, as if I don't stop and close my eyes I can have an absence, which can last up to 6 hours.
When I told my Neuropsychologist, I could see the look of doubt. My cognitive test showed normal apart from a slight concentration impairment and abnormal attention.
I'd hope anyone with cognitive symptoms will have done the Elevator Test and know it has five stages increasing with difficulty and it appears to be the simplest test.
However I only made it to level 2 before we had to stop as I began to have an absence. Neurologocal department meeting which included Epilepsy consultant (I'm on anti-epilepsy medication), consensus not connected to my epilepsy but a cognitive symptom.
I'm thinking of setting up a splinter Headway group called We Don't Even Understand Each Other (WDEUE).
Any other potential members?