I found this article a few days ago and it hits the nail on the head(no pun intended)!!!!
It's something that non brain injury people should get a chance to read, to at least give a better understanding of what happens to most people who have had some type of brain injury and what can be expected.....
I can't load the link but take a look at
brainline.org/content/2011/...
I found it to be so true and spot on.....
Mandy(**,)
Quite agree. It is a great article and family members should be forced to read it! Just as relevant if you are new to ABI/TBI or a long termer, like me. Its the fact that we are stuck with these changes and, although we can learn to manage them and avoid the noisy, stressful environments ( if we are lucky) a brain injury is a permanent issue.
Hi Gabimou
Have you any idea what the article is called? Every time I try to get it the page comes up with an error.
Thanks
Lovenhugs
Xoxo
me too...says error... thingy not found... It offers an option to go to a TBI topics page but that is just loads and loads of links ...
I can't open the link, either, but it's a minefield. I'm 9 months in to living with my ABI, and people around me swing from "ARE YOU FEELING ANY BETTER?" to "Oh, you can't do THAT!", there's no real understanding, because they're not living with it.
The changes in me, post BI, have given me lots of opportunity to reflect on how much worse off I might have been, but have also made me assess what I am, and am not willing to put up with. Some people know about my haemorrhage, but most don't know about the two other aneurysms in there, and the constant battle I have, of trying to keep 'level' between the insane swinging between paranoid anxiety, and utterly irrational anger.
I'm rambling, I'm over-tired, because the husband woke me up at 1.30am, falling into bed, and pulling the duvet off me Antagonistic, me?
hi gaia_rising,
i put this site together after a haemorrhage to try and help family and friends understand, its quite wordy but may be of interest - braininjuryftp.com
It's a really lovely site, Neil- I think I might have looked at it a while back, so apologies if I didn't thank you then.
My son has been brilliant, my husband, however, is set in his ways, which include assuming I'll do all the housework, because I have ovaries. I'm still battling with the irrational anger and irritability, which tend to make me 'leave the room', because my first impulse is almost always "I'm SICK of picking up your rubbish!", followed shortly by "If one of these aneurysms rupture and kill me, I don't want it to be while I'm pulling your used socks out from under the sofa!"
I'm working through it, and resigning myself to the fact that it's me that's changed, and that I have no right to expect other people to change because of it.
Hi Neil
just had a brief look so when I'm next on my day off I will catch up with
what you have written as my brain is not in reading mode tonight after a day at work.
I am sure its going to be interesting reading
lol separate beds is the answer, better yet separate bedrooms, or like tim burton and helena bonham carter, separate houses joined by a tunnel!
Got it folks.
When you get the error message click on the tab that says for friends and family.
The article is called Lost and Found.
Very true.
Hope I got that right and good luck opening it.
Lovenhugs
Xoxo
Enter brainline.org which will take you to the site then click on
For Families and Friends.
The article is under Lost & Found:What Brain Injury Survivors Want You To Know.
Hope this helps
Mandy(**,)
links being trunkanked by healthunlocked
it's a good list, lots of sites have it no idea who wrote it first! been around a few years at least.
I found it by chance and its one of the most excellent pieces I have read personally and I have come across quite a few when in research mode.
Even read some of the stories that people wrote and its unbelievable in how many years later some people are still suffering from the same symptoms or worse they had at the beginning!!!!
I found this is one thing the Dr's never mention even though everyone is an individual person at least some kind of knowledge could be explained.
My outpatient neuro dr did explain somethings to me and mentioned it would possibly be about 2 to 3 years when I would be feeling more myself .
Mine will be coming up to 3 years in April 2016.....
Mandy(**,)
Excellent Ill have a good read later this evening.
If only we'd all known of it way back when, be it a few months or 20+ yeRs ago. A great site, I learnt a lot and wish my family, who I have no contact with now, and vice versa cos it's not all down to me . I think it also helped put my whole life before in perspective, because following other links, went into other scenarios.
Bit I think stressful situations, which I've gone through for a variety of reasons, nothing abusive, but always having to find coping mechanisms and I didn't even know that phrase existed until I was an adult, but Sith hindsight not having a stable childhood or marriage I had to 'cope', having to cope when you have days you feel you can't, is stressful.
As we all know now, stress, caused by what ever reason, must be one of the worst of émotions. I know I get frustrated by things not being/doing/happening as the old me would have organised it to and I still now expect them to, if ,dads to our off days - I call them my 'brain rage' days. Off day, doesn't really cover how it leaves me feeling or coping with a situation that's gone wrong!
I'm going to email that web link to my Social Workder here, luckily for me she is English but works for the frençh gov, sometimes she brings a colleague with her, and with the two of them here throwing questions at me, asking for this or that document, which I know I have but can't find just gets really me worked up. Its my fault I cant find something, because I've put in wrong file, or left in a whole pile of paperwork that needs sorting or filings nd every time I tr y I get more and more confused, they are all administrative or medical sheets of paper, all in French of course, and I just flip out in the end, and so nothing ends up being sorted.
Hopefully by the time she s looked at the website, she'll understand better. She's a lovely lass, and has more patience with me than I have with her in those situations.
Brain injury -TBI question
Brain injury training for employees
Lost & Found: What Brain Injury Survivors Want You to Know - Part 2
