Improvement.: Hi All, Just wanted to share with you... - Headway

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Improvement.

MXman profile image
15 Replies

Hi All,

Just wanted to share with you that it seems like my brain is improving. Felt really different this week in that not so tired with the fatigue, suppose it might come back like it was though but hopefully not. Felt so much better this week wow what an improvement. Thank you to the Headway forum here and all you people for your help... Have a great Weekend. N X

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MXman profile image
MXman
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15 Replies
moo196 profile image
moo196

Great to hear you have felt improvement - just don't go overdoing it now....... enjoy the new you and if fatigue hits again ... rewind and know that it is possible to have that improvement :-)

I also try to be realistic and think I might've felt knackered by the ups/downs and complexities of life in any event without BI - just be kind to yourself and enjoy the weekend too :-)

K

razyheath43 profile image
razyheath43 in reply to moo196

awsesome! i agree with moo196,but all good!

cat3 profile image
cat3

Have a great weekend MXman ; You've obviously been doing something right !

Just don't push your luck now by doing something wrong and getting melt-down. I really hope this improvement persists. :-/ xx

MXman profile image
MXman

Me too, Funny felt a bit brain fatigued this afternoon though. Rest time...

cat3 profile image
cat3 in reply to MXman

Accept it as a learning-curve.................... and just keep learning !! xx

malalatete profile image
malalatete

Hi...glad to see you putting the flags out for a good week - never lose that enthusiasm and keep hold of it if/when/should the fatigue return.

Likelihood is it is always going to be a bit of a rollercoaster, but if you hang on to the highs the lows are a bit more bearable. And the good thing about being somewhere like here is that you get to record it all and can loook back and know that the good times were real, and that the bad times are merely transitory. And that an uphill direction of travel is indeed achievable.

Raising a virtual glass to toast your good week 😊

Good for you, long may it last. There are highs and lows with a BI (nrver a dull moment) but I am so pleased for you and hope this is a positive sign of good things ahead. Have a restful weekend and relax. All the very best

MXman profile image
MXman

Well last night was a tough one... Back to brain fatigue again so must of overdone it yesterday and Friday but not realised it. But at least I recognise it and now know that it can happen and there was me thinking I was getting back to how I was before... Maybe not. I do feel a lot better but it can and did get me when I was least expecting it and when my guard was down thinking that I was all back to normal. Sorry don't like using the word normal but thats the best way of describing it.

Its funny because I was wondering if diet has anything to do with brain fatigue? I'm sure it does. Hope you are all well and having a restful weekend. N

Gaia_rising profile image
Gaia_rising in reply to MXman

We peak, we trough, we did 'before', but probably didn't pay so much attention to it, now, I suppose we're tuned a little differently? I've had the luxury of six weeks 'off' work, to play around with the boundaries of what I can, and can't do, in a safe environment, where I can just bugger off to bed if I realise I'm reaching the over-tired toddler stage.

I'm back at work on Tuesday, and reckon that the first week will have to have a frank discussion with 'my' team, about looking pretty much the same as I did before, albeit a bit skinnier, but not being fully the same as I was, and, if I say I need to go home, that's not the same as my old trick of asking "Is it home-time yet?" as soon as I'd boiled the kettle in the morning.

I think that diet does play a big part in it, I started the six-week holidays with the intention of 'eating clean', lots of steamed fish, and dark green veg, I've just had a chunk of lamb shish, and a lump of home-made brownie for breakfast, though. I'll spare you the details, but it's that special time, where a lady just HAS TO eat whatever she wants, there and then. Food might be an issue when I go back to work, the lunch-breaks have been restructured, so the management get more hours out of the day, looks like I'll be taking a packed lunch in with me, because if I 'grab a sandwich', I'm rolling about on the floor, like a constipated sea-lion a couple of hours later, not that the 'school dinners' were much better, mind you.

I've always been a 'grazer', I eat what I want, when I'm hungry, and the school holidays are a nightmare, because, despite all best intentions, I'll have days when I don't remember to eat, without bells going off, to signify 'break time' or 'lunch time'. I forgot to set alarms on my mobile this time, and the 17 y/o has a habit of sleeping late, so we skipped a lot of meals between us. The body is a machine, and it needs fuel, blood-sugar dips will have exacerbated the headaches and lethargy in me, but I do genuinely have days where I just don't want to eat, nothing appeals to me, compounding the apathy... I'm my own worst enemy.

Onwards and upwards, kiddo, we're finding our feet in this weird, post-BI Wonderland, and we will find ways to work around the issues as they present themselves, because that's what we do.

Matt2584 profile image
Matt2584 in reply to MXman

Hi MX,

I would think diet would have an affect on brain fatigue. Having a poor diet can make one feel lazy, irritable and so on so I would think if a BIed person had a poor diet, brain fatigue would be far worse.

I finished a cognitive course with my Headway last week. Our session leader explained what fatigue was like in a good way, and this may also be a way how to describe fatigue to others who do not understand your BI and fatigue.

Imagine there are ten people sitting around a table. Person 1 could pass on a message to person 10 directly, like most able bodied people would.

Fatigue is where person 1 would pass on a message to 2 and then 3 and then 4 and so on until the message reaches person 10. In other words, BIed people process things slower than able bodied or "normal" people.

I quoted "normal" cos to me no one is normal.

I recently got a small bottle of Frankincense essential oil 100% theraputic grade and I have been wiffing that straight from the bottle. It's certainly woke me up a bit more. Though, it isn't good to over inhale it, so I have been told.

Take care,

MJ

sca2013 profile image
sca2013 in reply to MXman

Food - checkout ph360.me. Very interesting. youtube.com/watch?v=UrdLv4j...

EleanorS profile image
EleanorS

ah mate, every week can be different sometimes in early stages, but you will improve. if you can , chalk up a bit of chilled calmed and rested time for your brain, but dont worry if that doesnt quite happen, you will get there. hope you have a good day.

peaches2 profile image
peaches2

Glad to hear you were feeling more like yourself, that shows you that if you take care of yourself it can be achieved. However you have found this out as you are fatigued today. ....I feel for you. It really is a learning curve, I struggle to accept the fatigue and end up pushing myself forward....making myself quite ill and then I get emotional. I believe it's all about learning what your new capabilities are and not over stepping that mark....hard I know. I tell myself my brain can only be good for me and work the way it used to if I am good to it and bombarding it with too much to do and think about certainly doesn't help anything. It's taken a while to realise my brain is working in my favour to make it all ok, so I must do what it needs. Probably sounds weird to others who don't suffer but very true to us. You remember to rest when you need to. x

MXman profile image
MXman

Too true Gaia, I do eat at regular times but i find if I have something like fish and chips it slows mw down mentally, must be the oil. I eat healthy most of the time but there must be a connection between the right foods and brain health not fatigue. May be I'm just looking for an excuse to blame the fatigue when it hits.

Yes Eleanor trouble is with me I want to be just like I was before which is full of energy and completely flat out in everything I do, ill learn, probably the hard way but ill learn.

The fatigue is a funny thing peaches as my mind tricks me all the time in I question myself... Is it the BI is it this is it that...? but truly it is the BI and I have to except it and get on with it...

N

MXman profile image
MXman

Well that was crap, went to the cinema with the kids and my wife but had to leave and go and sit in the truck as the noise and pictures were just too much for me. Had a nap before we went and felt pretty fatigued but hay ho tried to push on as the cinema was booked but not good. Then got back and felt pretty awful, driving back was a chore too. Wish this feeling would go away...Feel like some one is pushing on the front of my head...

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