This is for B_S_A....thought others might also like to read. ...... :)

Hi Ben, as you know I more or less have the same condition as you.... What can I say to help you feel better....I can't....wish I could

(For those of us old enough to remember..... I often wish I was Tabitha from the tv series Bewitched.....she would wriggle her nose and make a wish.... if only!!!)

Anyway! From my own experience no one ever made me feel better.....I felt no one understood....they tried, but didn't ...nobody's fault.......it's just how it is.

So I like others have great sympathy and empathy with you and what you say...

Ben, there's good days and bad days, the bad days in the beginning far out weigh the good, but the good will take over.....eventually

In the mean time you have to be patience and to use your words......'Suck it up'

I will never forget those early bad days of crawling to the toilet, being scared to sneeze or cough...even eat in case my 'AVM went off again

I also remember having a high powered job working 40 plus hours a week, travelling the country and abroad for work and holidays, looking after hubby, son, home, garden and enjoying a great social life....all with the AVM. (AVM, with me since birth, I just didn't know I had it)

I think what I'm trying to say is...life changed me and I can't change it back....We all have to learn to live this new way of life the best and safest way we can.......and what will be will be....

Last week....Monday and Tuesday were dreadful, tearful, worrying, why me again days

Nobody could help me whatever they suggested.... Weds to Sun were.......happy, smiling, see son, grandson, friends, enjoy the garden, cook hubby a lovely meal ( he didn't know whilst i tried to peel potatoes they spent more time on the floor and our swear box will take us on a mini break )

Que Sera, Sera (Whatever Will Be, Will Be).......

[cat3]

If only loving thoughts and wishes could heal....................

xxx

[coetzeegisela in reply to cat3]

The best loving thoughts always to and by oneself. This we know. Our time, space, place - our air - is our own. But all else is a welcome relief, and always most appreciated. This, too, well we know.

[B_S_A]

Thanks all, life isn't so bad...it just changes from now on.

I hope we both find our peace at some point, it's great to have such support.