I was diagnosed around 8 years ago following a biopsy recommended by my inquisitive doctor after years of creams that didn't work. I get it badly under my breasts and arms. The pain is terrible, I blister, puss and it has a horrible odour which makes me feel dirty. Clothes are a problem, what to wear? Has to be natural fibres like cotton or linen and loose. Bras are a joke, just can't wear any although I need to. I could lose a bit of weight, I am a size 12-14. I am considering a breast reduction to remove the need for a bra and am seeing my doctor next week. Has anyone else had or considered this?
I don't know which parent I inherited in from as both have passed on, I am grateful it wasn't pemphegis vulgaris as am aware this is life threatening but still wish I didn't have HHD. I use Dermavate ointment when it is really bad with meopore dressings to soak up the puss which would otherwise leak through my clothing. Friction anywhere in my body results in a breakout. This year I have outbreaks on my face.