I used to tell people that I had HHD because during an outbreak there are some things that I simply can not do, like raise my arms, wear certain clothes, and of course sometimes I would be asked about the bandages on my neck or other areas where they may be visible. I felt like curious people deserved an explanation.
I would spend ten minutes trying to explain what HHD was, and how it affected me being able to do certain activities. The typical responses would include such gems as "Oh, that sounds like psoriasis, I have that. You should try (insert their current regime)... I bet it would work for you" and "oh, so it's dermatitis?" and "well it doesn't seem to bother you much, not like my Nana's dermatitis, that's terrible". Everyone became an expert with advice for me.
So I gave up. Now I keep it to myself for the most part.
Do you share your condition with others?