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Desperate for advice - Graves disease and thyroid nodule

Greggors profile image
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I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole alternate days and have good blood tests (aka do not need to be taking carbimozole currently).

My consultant has told me that my only option is for full thyroid removal. Due to previous eye disease I have been advised i cannot have radioactive iodine, the nodule needs to be removed regardless (a-typical) and I have been told I cannot have a partial thyroid removal due to the risks of later replases and scar tissue from multiple operations.

However, I am terrified that I am going to feel more unwell following surgery as I feel very well at present. I am scared to put weight on and feel trapped to make a decision quickly because of the nodule. My consultant has also said if I wish to have children in the near future then surgery is the best option.

Any advice would be so so so appreciated - I feel so overwhelmed!

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Greggors
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pennyannie profile image
pennyannie

Hello Greggors :

I don't know if you know but you have replies to your question on the Thyroid UK forum - where you also posted as we also cover Graves and all thyroid health issues :

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