Desperate for advice - Graves disease... - Graves Disease Su...

Graves Disease Support

1,859 members291 posts

Desperate for advice - Graves disease and thyroid nodule

Greggors profile image
1 Reply

I am a 29 year old female with Graves Disease and have recently been diagnosed with a thyroid nodule with a-typical cells. I have previously had thyroid eye disease when first diagnosed 4 years ago although this appears okay now. I have experienced 2 relapses, however I am currently on 5mg carbimozole alternate days and have good blood tests (aka do not need to be taking carbimozole currently).

My consultant has told me that my only option is for full thyroid removal. Due to previous eye disease I have been advised i cannot have radioactive iodine, the nodule needs to be removed regardless (a-typical) and I have been told I cannot have a partial thyroid removal due to the risks of later replases and scar tissue from multiple operations.

However, I am terrified that I am going to feel more unwell following surgery as I feel very well at present. I am scared to put weight on and feel trapped to make a decision quickly because of the nodule. My consultant has also said if I wish to have children in the near future then surgery is the best option.

Any advice would be so so so appreciated - I feel so overwhelmed!

Written by
Greggors profile image
Greggors
To view profiles and participate in discussions please or .
Read more about...
1 Reply
pennyannie profile image
pennyannie

Hello Greggors :

I don't know if you know but you have replies to your question on the Thyroid UK forum - where you also posted as we also cover Graves and all thyroid health issues :

Not what you're looking for?

You may also like...

I have Graves Disease and I am being pressured in to making a definitive decision: RAI or surgery...

Hello, I have been diagnosed with Graves Disease since August 2015, aged 31. I have tried Block &...

Graves’ disease? Not diagnosed

Hello I am new to this site. I have been getting symptoms which I’m a bit confused about and I...

Menopause and graves disease connections?

Is there any evidence of any connection/misdiagnosis of graves disease and the perimenapause or the...

Graves gloom

Feeling lost. My thyroid has gone from severely hyper to severely hypo. Consultant has stopped my...

Looking for help with Graves disease

Hi I'm looking for help with Graves as I have been having symptoms much the same as my sister who...