Thyroidectomy any regrets?

[tango_1972]

Hello,

I need some advice, please. I have a TT scheduled in two weeks and I getting nervous and beginning to rethink my decision. A little background on me, I was diagnosed with graves in 2011. It took just over 18 months for the blood results to go into the normal range. Over the years I have been in remission on and off, since 2016 I have had a few stressful life events that have affected my hyperthyroidism requiring me to up my carbimazole meds. Over the past two years, my endocrinologist has begun to talk to me about putting graves behind me by having a TT. She said it is not recommended to be on anti-thyroid meds for too long as it can affect the liver and white blood cells. Also, the meds for replacing the thyroid are more easily absorbed by the body and are safer. Is anyone here happy with TT or any regrets?

Thank you

[Dutch_Butterfly]

I was diagnosed in 2015 and had had 4 relapses. My doctor talked about rai, but I refused. At the moment I am on a low dose (0,6 mg) of methimazole daily and I want to do that long term. When my illness was first treated it was on Block and replace therapy, and I discovered I was constantly nauseated by the levothyroxine. So I want to prevent that I have to use levothyroxine. That's why I changed my diet (Paleo) and still trying to change my lifestyle (less stress, or at least trying to cope with stress) and I am working on my other triggers as well (virus infections etc)

[pennyannie in reply to Dutch_Butterfly]

If you don't know of Elaine Moore suggest you dip into the Elaine Moore Graves Disease Foundation website as Elaine has a wealth of information including alternative and more holistic complementary options you might like to consider and read around Graves being a stress and anxiety driven auto immune disease which is poorly understood and badly treated in mainstream medical. elaine-moore.com

Most current research I've managed to find :-

ncbi.nlm.nih.gov/pubmed/306...

pubmed.ncbi.nlm.nih.gov/338...

This post was also posted on the HU Thyroid UK forum so you might like to visit t again over there as there are very many replies which you may find interesting.

I'm with Graves post RAI ( as is Elaine Moore ) and now manage lingering Graves, thyroid eye disease ( caused by the RAI ) and hypothyroidism and now need to self medicate and buy my own full spectrum thyroid hormone replacement as the NHS have refused to prescribe me anything other than T4 - Levothyroxine.

I've tried linking you into the other post but not having any luck - maybe if you complete your profile and register I could then do this ?

[NIKEGIRL]

Hi. I had a TT 5 weeks ago. No regrets. I see you will have had yours so I hope you feel the same. Getting levels ok after surgery takes a bit of time and I am impatient so I am thankful to PennyAnnie who has given me so much support in the last 30 months.