Gluten Free Guerrillas
8,428 members3,484 posts

gluten free

after going to see my dietitican on thursday told her about my diet and what i can and cant eat and she asked me if i have had my blood tested for chroans disease or cealic sorry not spelt that correctly i said yes but it came back normal and she said that if i eat gluten free it can make my test normal so she recommends i eat gluten and wheat products until i get the tests also i am getting tested for allergies and i.b.d as my i.b.s has changed for the worse also i get severe chronic pain before and after empting bowels and now i have weak bladder and have a prolaspe and i try not to get stressed and i am awaiting a c.t scan of my kidneys as blood in urine which i have been getting for yrs on and off and kidney stones twice and prone to infections hopefully get a diagnosis

3 Replies

Oh dear, you are in the wars! Chin up and keep smiling - you'll get through it. You should ask your doc for an endoscopy - when they take a biopsy of the stomach that will give a definitive answer whether or not you are a coeliac! Good Luck


Hi Kat, wow, I can't believe how many things you have to deal with. It sounds awful. Unfortunately you do have to eat gluten to get a positive test.

I had to eat gluten for 6 weeks before my first endoscopy last August, I couldn't tolerate it and had to go back for a second in November. I only had to eat gluten for 3 days prior to that endoscopy. I don't know how much you have to have in your system for blood tests though.

If you have appointments booked for more tests see if you can speak to a gastro consultant at your local hospital for advice on how long you need to eat it for. I don't know if its possible to get a phone call or email but its worth a shot.


You normally need to eat gluten for at least 3 - 6 weeks before your coeliac blood test. Given all your health problems it is well worth asking your GP - if your blood test is postive - whether they can recommend a capsule biopsy or / and genetic test instead. The gold standard for coeliac disease confirmation is positive blood test + then a biopsy to check for flattened villi. No one really wants the biopsy as it can be daunting even with sedation- so it's worth asking about the other follow up tests as some trusts are now considering other forms of follow up tests e.g camera pill which would show flattened villi as well.


You may also like...