This is a contentious question, but it needs asking.
From a lot of posts on here, and personal experience, it seems that Coeliac UK are not very upfront about the fact that 'gluten free' foods carrying their mark of approval or listed on their food list are actually making/keeping people with coeliac ill.
I posed the question recently to CUK on why gluten free foods making me ill. I was told by the genial staff member that a gluten free diet is not suitable for everyone with coeliac.
Mind officially blown!
This is actual quote from the email: "We are aware that some of those with Coeliac Disease may be more sensitive even when on the gluten free diet. If this is the case, we would always recommend discussing this with your dietician or gastroenterologist to determine whether your diet requires further attention and investigation."
So, go on a waiting list for months for a gastro appointment when in fact the problem is not with your diet but with the foods they are pushing as 'safe'. And chances are the gastro doctor has been brainwashed into the 20ppm remit/that Coeliac UK are the holy grail of all knowledge for coeliacs. FFS.
They will gaslight and gaslight and come out with lines like this rather than admit the products they are making their money from (via manufacturers) are actually NOT gluten free in the true sense.
I've seen mention elsewhere on an older post that someone know's the CUK dietician and knows that even she won't touch 'gluten free' foods manufactured and pedalled to those with coeliac as 'gluten free' and safe for consumption.
Even more concerning to see the Chief Exec started her career in marketing for Coca Cola.......
So this begs the question, what the heck are CUK about if not to simply keep people ill, confused about why they are still ill, and then gaslight them into believing it's something else? How are they legally still allowed to hold license/legal ability to trade as a charity if this is what they do?
Should they not be held legally accountable and shut down/replaced with an organisation that is fit for purpose?
All thoughts welcome.