Hello Gluten Free Guerrillas! The name goes well with celiac attacks.

[TheKaleidoscopeInMe]

Hi! I am here to exchange tips with people who have CD. I was dx’d 3 years ago. I am still learning and hope to give and get some support. My doctors think that I have had it my whole life, but I wasn’t dx’d until I was 48. And as a bonus, I have other autoimmune disorders too!

[Hidden]

That's really tragic that it took that long to get diagnosed. I've heard that it's really difficult to get diagnosed with celiac and most celiacs are either misdiagnosed or undiagnosed. I think I've also had it since I was a child as I've displayed a lot of the symptoms that point to celiac. I haven't been diagnosed. I was tested for celiac but I was unaware that you had to be eating gluten before the test so the test was basically useless. I'm 28 and have thyroid disease which is common with celiac. I experience the neuro symptoms that some celiacs have as well. I'm also looking to meet more celiacs to discuss symptoms and see if we have similarities.

[TheKaleidoscopeInMe in reply to Hidden]

Sure Slushy. I would be happy to talk with you. I have been told that Coeliac can be a wellspring for other autoimmune disorders. Before my doctors or I knew about my CD, I had been diagnosed with Dysautonomic disorders among others.

[Bazmack48]

I was diagnosed CD at 70 years old and after two years I still yearn for a decent sandwich. I get support through a local group and the dietician at the hospital. I have many other health issues, colitis and hypothyroidism to name a few. Health unlocked is very helpful so ask questions and somebody will give you an answer.

[TheKaleidoscopeInMe in reply to Bazmack48]

Thank you. Yes, it took me over a year to find good bread. And even with that it’s only good toasted or grilled. And always costs twice as much for half the size.

[corby39]

I was diagnosed 10years ago after being treated for Psoriasis for several years.obviously my doctor got it wrong.since then I have tried to avoid him for causing me a lot of discomfort.still trying different creams don't think there is a cure.

[liver-bird]

I was diagnosed aged 70 but think I had it most of my life and was fobbed off by doctors claiming it was just colic. I read a book called Grain Brain and immediately cut gluten, felt better, told doctor who tested and found it, so basically I found it. I have other autoimmunes - PBC is the most serious, hypothyroidism too. These lead to osteoporosis and I suffered the pain of 5 bone breaks. The implications for non diagnosis are huge. Despite all this, and at the age of 72, I am now quite well if I pace myself and eat healthily take heart 😊

[TheKaleidoscopeInMe in reply to liver-bird]

Thank you

[nuigini]

I was diagnosed three years ago at 68 and am not as sensitive as some. I sometimes wonder if the diagnosis is correct. My blood work was over the top for CD, but the endoscopy was "indicative" but not "conclusive". Nonetheless I have been GF for 3 years and have notices less bloating, nausea, occasional cramping and water retention. Have given up buying GF bread. as it's not worth consuming. There are a few good ones for toasting but it's still not the sourdough, rye, and grain breads I loved so I can't be bothered with the added calories. I was also diagnosed with polymyalgia rheumatics (PMR), another autoimmune disease, six years ago. PMR is treated with prednisone so I battle with my weight and can't be bothered with food I don't actually enjoy.