Is gluten sensitivity an 'underlying ... - Gluten Free Guerr...

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Is gluten sensitivity an 'underlying condition'?

MausenMumma
MausenMumma

I suspect I'm celiac, but haven't got the diagnosis.

7 Replies
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Your question is unclear. Can you provide some more information on what you are asking.

MausenMumma
MausenMumma
in reply to Mise

Forgive me! Vague times. I was wondering if gluten sensitivity/suspected undiagnosed celiac compromises my immune system.

Mise
Mise
in reply to MausenMumma

It will do if you are nutritionally deprived due to intestinal absorption issues. There is also the issue of weakened spleen function is a number of people with coeliac (I've read somewhere this can be around one third of diagnosed coeliacs). Coeliac is autoimmune so it's going to be a wonky immune system generally before you consider the added issue of any virus attack on your body.

If you are concerned specifically in relation to Covid-19, Coeliac UK provide advice on this at: coeliac.org.uk/information-...

Recently the head of public health in Scotland suggested anyone with coeliac should take self-isolation very seriously, but that seemed to be a broadsweeping answer to a question on Twitter from a member of the public.

Unfortunately, without a positive diagnosis for Coeliac you are left in the dark of a) maybe having coeliac but not knowing if you have; b) not having coeliac but still having the health impact of a non-coeliac gluten intolerance.

If you suspect you may have a weakened immune system for whatever reason it's best to speak with your GP.

MausenMumma
MausenMumma
in reply to Mise

Thanks for the response. I have necrobiosis lipoidica, as well, and that can indicate weakened immunity. I am prone to bugs, generally, but have no official or clear causes. I'm a teacher and I have been a little anxious about going into school. The closures mean I will be in a lot less. I am keen to help.

I wonder if it isn't worth emailing my doctor and asking if he thinks I should be cautious.

He has been dismissive after all my tests came back 'normal'.

Once the dust settles, I need to change doctors and have someone put all of this together for me.

Mise
Mise
in reply to MausenMumma

I would put a call in to your GP (or email). I think it's too serious a time in terms of the need for people to self-isolate to hedge your bets. If your doctor is dimissive ask to speak to a different doctor at the practice you are registered with (assuming there's more than one?). In the longterm, yes, switch GPs if the one you are attending is not taking things seriously.

To add to this - I've had the same issue with all the symptoms but none of tests showing positive for coeliac. The testing was poor as no one offered second test to check for genetic markers or offer a biopsy. Its frustrating looking for answers and feeling your health declining. I found just drawing the line in the sand and declaring it to be non-diagnosed coeliac was the best way. It still stands against me as I don't have any follow up consultations and it's not on my notes but don't trust GPs with coeliac as they are very poorly informed, don't have a proper handle on the testing and many still view it as a bit of a food issue rather than full-on autoimmune condition with many 'spin-off' conditions.

MausenMumma
MausenMumma
in reply to Mise

Thank you, Mise; your supportive response means a lot. x

Mise
Mise
in reply to MausenMumma

No worries. This is good web forum for info. Look after yourself x