I am excited to be part of a group th... - Gluten Free Guerr...

Gluten Free Guerrillas

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I am excited to be part of a group that understands

lovejesus7 profile image
8 Replies

Hi everyone I have IBSC which is no fun at I am setavtive to gluten and driary which makes life hard.But I have learned how to eat.I get cravings every so often so I give in just a little then I am ok.My doctors told me that as long as I have a little on occasion I will be fine so that what I do. On a daily basis thought I do my best

Thank you for creating this group for those who have this

Love in Christ,

Mandy

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lovejesus7
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8 Replies
Penel profile image
Penel

Perhaps have a look at the Low Fodmaps diet. It can be helpful if you have IBS.

healthline.com/nutrition/lo...

lovejesus7 profile image
lovejesus7 in reply toPenel

I have been put on the fodmap deit as with DF and GF and that what makes eatting that much harder

Regalbirdy profile image
Regalbirdy

Hi,

Welcome to the group.

Sorry to question you, however are you sure it’s IBSC - have you ever been tested for Coeliac Disease? I ask because constipation, plus intolerance to gluten and dairy are all known Coeliac symptoms. A significant number of IBS cases are actually wrongly diagnosed. Coeliac UK put it this way :

“Irritable bowel syndrome (IBS) is a common misdiagnosis in people later diagnosed with coeliac disease. One in four people with coeliac disease have previously been treated for IBS. Symptoms of IBS are often similar to those of coeliac disease. It is important for anyone with IBS like symptoms to be screened for coeliac disease.” (coeliac.org.uk/healthcare-p...

lovejesus7 profile image
lovejesus7 in reply toRegalbirdy

I have it were I get back up,instead of going all the time

And yes I am on the fodmap deit as with the DF and GF

So that is why I struggle so much

lovejesus7 profile image
lovejesus7 in reply toRegalbirdy

The doctors keep going back to Ibs when asked about it

Regalbirdy profile image
Regalbirdy in reply tolovejesus7

It might be worth having another conversation with your doctor and insisting that they do a blood test for Coeliac Disease (if they haven't already).

If you're UK based then NICE guidelines CG61 for IBS apply to you. They state in section 1.1.2 (Diagnosis tests):

"In people who meet the IBS diagnostic criteria, the following tests should be undertaken to exclude other diagnoses.....- antibody testing for coeliac disease (endomysial antibodies [EMA] or tissue transglutaminase [TTG]). [2008]"

U.K. Doctors have to take heed of these guidelines (that's why they exist!).

Btw, Ttg is the most commonly used blood test in the testing of Coeliac Disease. However you do have to be eating gluten every day for at least one meal for six weeks for it to have any chance of giving an accurate diagnosis.

lovejesus7 profile image
lovejesus7 in reply toRegalbirdy

Thank you

Penel profile image
Penel

You might find the IBS group a useful one to look at, too.

healthunlocked.com/theibsne...

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