So my bloods have come back (quoting my dr) as 'negative for celiac or gluten markers but positive for inflamitory markers, so somewhere in your body you've got inflammation' which wasn't super helpful lol. She said that the nhs won't fund me to have endo cos my CD test was negative and that they can't do any more sensative ones then just the basic test which can be negative and still have CD. I don't care if I have CD or gluten intolerance but the more I know for me the more I know for my children's future health and maybe save them my problems.
I've been told to stay off gluten for 6 weeks then take another test for wheat allergies and to see if the inflamitory markers are still up. Then try eating a little gluten and see what happens and to keep a food diary the whole time. She said that diagonsis doesn't really matter if symptoms improve when off gluten then stay off gluten.
I was told that private clinics can do more sensative blood tests but the stuff online just confuses me. Should I just accept a dianosis of intolerance or fight for clarification? Does anyone know of any cheap and comprihensive private clinics for blood tests?
Also- I thought (from all my research) that CD bloods tests can be negative even if CD is present but dr said that if it's not in bloods then it's not in me so to speak. Basically she doesn't want to do anything more if sympoms go from not eating gluten that's enough for her. I'm not sure I'm happy with this, I'd rather know for sure where possible for my kids sake and future health. Should I push or let things be?