Hi, just wondering if you guys could provide some advice for my 8 year old girl.
Her symptoms are: very small in height, constipation, frequent urinary leaking, bumps on the back of her arms, occasional achey joints and vomitting, but these two things are very sporadic, like maybe once a month. During the 2 month gluten challenge she has developed scaley areas on her chin and eyelid, and had a crack at the corner of her mouth, that's now gone away after being gluten free for a week.
Her results are as follows:
TTG IgA Ab: 15.4 U/ml (<15.0) HH
Deaminated Gliadin Peptide IgG: 17.2 U/ml(<15.0)HH
IgA: 0.7 g/L (0.4 - 2.2)
Endomysial Antibodies: Positive A
DQ2 gene: demonstrated
DQ8 gene: not demonstrated.
So her biopsy came back negative for Coeliacs. Which is great. However, I'm now wondering does that mean something else is wrong causing her to have elevated markers. I know that biopsy's aren't always correct due to them not being able to test all the intestine (they took 6 samples), however, I guess I have to go with the results as they are presented, but would appreciate your advice on what else you think may be going on?
So if its not coeliacs, what else could be the issue? The doctors just seem to wash their hands of it and say "it's not coeliac disease, the end". What could be my next steps? Do I need to go back to the doctors? I have taken her to a Natropath who has identified some nutrient deficiancies. Could these cause the elevated markers? Or is there something else I should get her tested for?
I'm at a bit of a loss now! Thanks for your help.