Help with a rash please : hello... - Gluten Free Guerr...

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Help with a rash please

Jlavedas7 profile image

hello everyone so I've had this rash for about 2 months now I've been to the doctor about a month ago the rash wasn't as bad. she told me it was stress. I only had about 9 little dots on me looking like pimples but as the month went on and proceeded to get worse I was to be able to call like nine on my stomach now I can't cout them at all and I get like little blisters on my hands and then after they pop the skin becomes really hard and it doesn't heal it seems like when I went to the doctor I specifically asked do you think it's scabies and she said no so I'm looking at all different kinds of eczema and also gluten allergies but everyday I feel like I'm kind of trapped in my own body of a itchiness. I have bumps mostly on my stomach my breast my hands my arms there's a couple on my foot couple on the bottom. I've tried hydrocortisone cream and it doesn't stop the itch and I've tried allergy medicine and it does, down a little bit like I don't itch as much. and I live with my daughter and my boyfriend and they have no symptoms at all. I would take pictures but its so hard I leave bruises on myself and you can't really see the ones on my hand in the picture all please help someone I will be so grateful to know what the heck is going on with my body

12 Replies

I had similar rash like that. Tried various creams, then I gave up dairy and gluten. Had numerous test all came back blank! However as I stressed after time my rash and symptoms have gone. Do check with your Gp before giving up. But as soon as I start eating wheat and dairy get symptoms back again.

Good luck with everything. Wishing you a speedy recovery!

Tea1234 💞

Is this Dermatitis Herpetiformis which some people get if they are coeliac or react to gluten? There are other posts about it in the forum.

Hi there,

I don't really have any words of advice, but it sounds a lot like a rash I have all over my back and arms. I was recently tested for celiacs and was negative. Now I plan to go gluten free and see if that works?

I hope you find a solution! Nothing worse than feeling like your body is fighting you

Good luck ☺️

go to docs and ask to be referred to dermatologist it sounds like what I have dermatitis hepetaformis

SinCyndi profile image
SinCyndi in reply to Cathdodd1

Hi, I also have DH, found out that in addition to eliminating gluten that avoiding dairy, soy and iodized salt helps! Just wondering if you have any additional tips for keeping your symptoms at bay...I still have episodes on occasion

I have something similar it seems, a raging itching area, which never really goes away. I was told it's an allergy to 'cheaper brand' soaps and shower gels. So I forked out a few quid on some 'good stuff' and there is no difference whatsoever.

I need to go back and have a check, but I seem to spend half my spare time in the doc's so am having a time out, to let someone else have a go, trying not to scratch the itch though is a nightmare at times.

You defo need to get it checked, id echo what most have said, cutting out dairy has also improved much for me, might be worth a try.

I had something that sounds very similar. The last doctor I saw said it was a kind of eczema and that the hydrocortisone cream I had been using was no good (she was right). She prescribed steroid cream and within two weeks, four years of constant itching ended. (I'm also gluten free.)

Hi there, like some of the others above I wonder if it's dermatitis herpetiformis, which is a skin reaction some coeliacs (like me) get? You can ask your doctor to get a biopsy of one of the blisters and compare it to a non-inflamed area (that's what I had done). Going off gluten (and many other things: lactose, coffee, sugar, soya products, xanthan gum etc etc) really really helped. The minute I have something I 'shouldn't' have the flareups return... I would persist with your doctor - don't give up gluten etc until after the biopsy. If you decide to come off gluten be strict, and don't replace gluten with "Free From" products because they are FULL of other irritants for a lot of people... Good luck! You may well find that after a period of being off certain items you can reintroduce them, at low levels - apart from gluten (if you do turn out to be coeliac). Hope you find some answers! :)

SinCyndi profile image
SinCyndi in reply to Lexy and sugar are still in my diet, I have DH...still get flare ups though not as bad as before I cut out gluten etc..thanks for mentioning it!!

I had the same thing for over a year, was put on every cream and med my doc could think of. Did the scabies treatment twice...nothing worked. Also scratched so much I would bleed! I also had burning pain along with blisters, felt like someone was holding a blowtorch to my scalp especially. I was at my wits end so depressed I was suicidal because I thought it was "all in my head" finally went to a dermatologist and diagnosed with dermatitis herpetiformis. Removed gluten, dairy, soy, and iodized salt from my diet and within a couple of months the rash disappeared! I still have flare ups on occasion but seem to be when I'm not careful and when I get stressed. Also through some allergy testing I found out that I'm allergic to a couple different chemicals found in most personal hygiene products and hair dyes...oh yeah and nickel and gold!! Bottom line is you should skip your family doctor and get to a dermatologist and get allergy tested!! On a side note I lost 35 lbs after changing my diet and have so much energy I don't know what to do with it!!!

I survived on using frozen wet t towels all over my body it takes the heat out of the itch

Definitely sounds like Dermatitis herpetiformis - tell your GP to refer you to see a dermatologist asap. I remember it well, blisters on knuckles, elbows & more (I'd forgotten about the feet!)

Nothing you do externally will resolve this. It is caused by gluten ingestion.

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