hi there - apologies in advance for longwinded post
I've had gut problems all my life (mainly extreme wind, so painful that it would make me break out in a sweat and feel faint). I had tests in my teens (I'm 53 now) when I would end up in agony every time I drank a pint of beer. No diagnosis (no idea what tests were done).
Fastforward many decades. It's got to the point where the diarrhoea is threatening to make life very difficult (some very close calls when out in public). It's a standing joke in my family that I never put on weight (have in fact lost a stone over the last year) and poo 6 times a day often (true). Everything I eat makes me unbelievably gassy (so much so that I regularly get very little sleep, so am often exhausted). I had a load of scans for anything scary a year and ago so that was good.
Bloods showed borderline Coeliacs a year ago but I didn't find out about this until 2 weeks ago (saw different doc who showed me the results). In the meantime in desperation I'd started the low-fodmap IBS diet (so no gluten along with about a million other things) which initially made a HUGE difference (i honestly didn't know a poo could be like that :D). Another coeliacs test (again I didn't know it was done) showed that my antibodies had dropped to negative for coeliacs while I was (pretty much) gluten free. Since i found out about these tests I've tried to be properly gluten free (i really wasn't very strict before, had no idea about cross-contamination, sneaked the odd mouthful of cake if no one was looking etc).
Other symptoms: recent heart palpitations (new thing, not dangerous as checked by doc), restless leg syndrome, occasional migraines, recent outbreaks of spots and weak nails (never had either before), truly annoying itchy scalp and arms (but no rash or spots), recurrent thrush and mouth sores (which I've also assumed to be thrush).
And if it DOES sound like coeliac why am i feeling worse 2 weeks into being strictly gluten free? Even the low-fodmap doesn't seem to be working anymore
Oh and I have hashimotos hypothyroiditis (seems to be under control according to docs). Weirdly I have noticed that on the odd mornings my stomach isn't having a huge party when I wake up, it immediately starts up big time when I take my levothyroxine.
Any insights? I'm truly truly fed up with it all