Hi,I'm gluten intolerant (not tested).
I have been referred for an MRI scan on my feet by my GP. as I have complained (for years) about tingling/pins and needles burning and swelling of my feet. I have just found on the internet that this might be gluten related.
Has anyone any experience or comments??
Hi Beaton,
You're right in that gluten can cause neuropathy. However (if memory serves me correctly) pins and needles can also be a sign of a B12 deficiency - have you had this checked recently?
Hi Regalbirdy,Thanks for replying. Yes I believe pins and needles can be B12 deficiency. I don't think my GP or endo. have EVER checked my B12.
I'm trying to get my facts right before my next appointment with my GP next month. It seems I have to prompt him about everything. 
Prompting? Me too.... I'm seeing mine tomorrow - so have been doing lots of homework!
Ps. If you're going to go down the B12 route, ask them to check your Intrinsic factor as well. This is the test for pernicious anaemia. Those who have thyroid problems often have B12 problems such as PA.
Thank you,good luck tomorrow.
Have you looked at PoTS and pooling - sometimes sensetive people have collagen related difficulty underlying PoTS, try increasing both salt & fluids to see if it helps - and buy flight socks to wear if you have to stand for long periods - and try regular consistent swimming or cycling (on road or in gym) to strengthen cardiovascular pumps in calves. Good luck.
I have those symptoms in my hands and feet and I've noticed the symptoms get worse after eating!!.
I have had all the test - nerve conduction- diabetes screening.
My consultant cannot give me answer but believes it is related to my coeliac disease !!!!!
There is research showing a link between Coeliac Disease/wheat intolerance and neurological issues.... and if you're interested in this, it might be worth looking into the teamwork of a gastro enterologist and neurologist from Sheffield Unversity. Here's a link on one article
acnr.co.uk/pdfs/volume2issu....
There haven't yet been enough studies/research for the medical profession to accept the link and most GPs do not know about it. By report, it often affects limbs, hands and feet. From experience (and please don't think this is anything other than experiince: there is no proven medical proof)
1. Before my mother was diagnosed with CD, she had such pains in her legs, she spent much of her time lying on the sofa. She then lost the use of one foot. She thought it was because a nerve had been trapped.On giving up the wheat, the leg pain disappeared but her foot never recovered.
2. By the end of a 2 week all inclusive holiday (when I think I'd been glutened a little every day), the only way I could relieve the pain in my legs was to take hot baths in the night. Back home, I was diagnosed with sciatica..... didn't really ring true to me and once back on my strict no gluten diet, it disappeared.
3. A friend's friend who's newly diagnosed and was just 'chatting' about her experiences, not knowing mine, said she had extreme pain in her thigh at one time and thought it was due to gynae probs. But it was still there, even after a hysterectomy. Once she gave up wheat, it went.
4. Lunching with a friend whose brother is CD, we were discusssing our mothers. His mother was never diagnosed, but there's now diagnosed CD in the family she was 4 1/2 stone when she died. He said she, too, had lost the use of a foot.
There wasn't tingling etc linked with my leg pain but when I was researching, it seemed this wasn't uncommon. My personal opinion is that your tingling might well be wheat/gluten linked.... though your GP is unlikely to agree .....
The role of gluten in baking
Please could anyone give me advice was told I have celiac disease 8 weeks ago .. bad lower right pain
living in France
Sudden pain
Confused :( super allergic to gluten but negative result for CD and then told to just get on with it!? Do I get a second opinion? x
