New here and wanting to share glioblastoma experience

[RescueLabMom]

Hi, I am new here but have lots to share about glioblastoma as I was the caregiver for my mom who passed on Oct. 20th. This cancer sucks and I hate the way it affected my mom.

[T_hope]

Hi, I read your story about your Mum on another chat. I’m sorry for your loss. I was also a caregiver for my Dad who’s story is very similar to your mum’s. He passed away in September. This is a terrible disease and it’s horrible to watch your loved one who was once so strong deteriorate so quickly. Wishing you strength and peace x

[Something_blue in reply to T_hope]

Hi. I’m so sorry to hear about the passing of your Dad. It is such a cruel horrid disease.My Mum was diagnosed with a grade 4 Glioblastoma in June 2021 and has deteriorated a lot recently, we are just waiting for a re scan to see what’s going on (which makes me feel sick). We love her so much and it is heartbreaking. Just trying to make the most of every moment with her.

Sending you love & strength x

[T_hope in reply to Something_blue]

Hi Something_blue, I'm sorry to hear about your mum. How's your mum doing? is she able to walk, talk and eat? I know exactly how you feel, I wish you so much strength.

Honestly, the best thing you can do is to be present and absorb every single minute you have with her. If she can still walk and talk; record everything. Take pictures, videos, write and draw - just anything to keep as memories of when she's still able to do things. Don't think things will slow down. Things can speed up very easily without you realising.

Ask all the questions you can think of or conversations you would like to have with her. Don't shy away from anything, show all your love and care to her. Clear up any disagreements and forgive one another. These are the most important things during this moment. It's a really tough disease to watch.

I'm sorry your family has to go through this. and I'm sure your mum is feeling all the love around her. Wishing you much love and strength xx

[Something_blue]

Hi. I’m so sorry to hear about the passing of your Mum. It is such a cruel horrid disease.My Mum was diagnosed with a grade 4 Glioblastoma in June 2021 and has deteriorated a lot recently, we are just waiting for a re scan to see what’s going on (which makes me feel sick). We love her so much and it is heartbreaking. Just trying to make the most of every moment with her.

Sending you love & strength x