ABPA & Bronchiectasis

[cunningm]

I was diagnosed with these conditions 5 years ago. I was on prednisolone for starting at 40mg daily and over 18months reduced to 0. This remission lasted nearly 2 years however I had to go back on them 20 months ago and I'm still taking them, at the moment still on 20mg daily. My problem however is the pain I have been experiencing on and off for the past 12 months, it's in and around my torso, deep inside, it feels like a muscular pain at the same time jarring and stabbing, about 9 months ago ever time I tried to stand up it was excruciating but went away after a few steps. It would also be painful if I bent over and then tried to stand up. It then disappeared almost altogether until last week. One night I tried to stand up, I only got to a half standing as I could not straighten myself and I was lop sided. It too half an hour to be able to sit down and did not get much relief for about 12 hrs, ever time I tried to move it felt as if someone was stabbing me. Has anyone else suffered from this sort of pain using steroids? I did mention this pain to my specialist, who said it was probably Muscleoskelatal? Any info would be appreciated.

Mary

[GAtherton Administrator Fungal Infection Trust]

I would agree with your doctor - high dose steroids can have an impact on your bones and connective tissue. There are precautions you can take that your doctor will advise on - you will see a list here health.ny.gov/publications/...

[cunningm in reply to GAtherton]

Thank you, I will speak to my consultant.

[loobyloo222]

Hi- read this and thought this could be me. I know exactly the kind of pain you are speaking about and the worse thing is it is completely unpredictable and you never know how long it will last. The good news is I now get them less and less- I think they are caused by cramp in the inter-costal muscles around your ribs- tonic water is a good remedy, some people say bananas are good too. The pain is horrible but for me lasts only a few minutes. The flutter device I use for physio has helped a lot- as well as deep breathing exercise. Hope it gets better!