New diagnosis

[chantelle343]

Good Morning, I have received a diagnosis of FND after being passed from pillar to post since 2017. It wasn't until my eyesight was so poor, double vision and loss of peripheral vision which the optamologist couldn't find a reason for and referred me to a neurologist that I got my answer. I had been diagnosed with fibromyalgia and chronic fatigue in 2018 and then trigeminal neuralgia in 2020. Most people who ask what's wrong with me give me the "attention seeker" or "yeah yeah" look smile politely and say "aww it must be awful. 😐. Yes it has been awful and so far continues to be. All I have been is a website to look at and a bunch of referrals. I have read across sites the longer a misdiagnosis the harder it is to resolve the issues. I am generally a positive person with a nothing I can't push through attitude but it's hard not to feel irratated when you feel you are having to defend your symptoms and explain your condition even to your GP.

As a newly diagnosed member I would really appreciate seeing some positive stories 💗 it's already brought me comfort reading through some of the posts on here. It's reassuring to see I'm not on my own.

[Panther5000]

I have been reading a lot of things. It is pretty much a brain problem from what I understand. I have also decided that it is a way for my body to get me to slow down and rest. I think no matter when diagnosed there is a way to improve your current situation. Do you believe in God or a higher power? Only asking so I can know if you will understand my answer or not. If not all is not lost either I just might have to approach it differently.

[Lady4 in reply to Panther5000]

I agree, I think its when our brain become too overwhelmed (with life events), neurons firing here and there and it takes over, to protect its body (our body/organs etc). Once we show it, we got this, things can change but not overnight.

[Lady4]

Hi your not alone and with the right team by your side, anything is possible. Start with the most dehabilitating symptom and work your way down them. Sometimes its trial and error as everyone is individual.

Its easy to get stuck, eat the wrong foods, lack of sleep and exercise but these are things that you can improve upon if need be, right now.

Be kind to yourself, try and be mindful and stay in the here and now, appreciate the beauty of nature and breathe.

I will try and post some more success stories too as I often find you learn new techniques/aids/sensory adjustments that can make a big difference.

Once you have several "wins" on your side, you won't be too overwhelmed by one or too "blips".