Fnd hell: Still really bad with my fnd... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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Fnd hell

cocogoingnuts profile image
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Still really bad with my fnd pretty much stopped going to see the doctor as everything I went with something new or a relapse since diagnosis they pretty much fobbed me off so this past 2and a half years ive had no help and and pretty much no help no sleep I went back to the doctors and emailed them a copy of the neurological sheet found on fnd hope so hr was as much info before my appointment I started with my insomnia he prescribed me an app yes then I say that is it I need to be seeing my neurologist he asked me why so I told him when I was diagnosed he gave me a website page and said it anything gets worse come back he looks at Me turns the moniter around the the neuropsychological doctor sent them my diagnoses with bold text at the bottom of the screen saying nothing to be done so I've been just trying to get my head around that demanded Nero appointment finally after the waiting list for12 months of this he'll I have an appointment the end of this month and I ain't leaving without help I've got so many words after this maybe even complaints

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cocogoingnuts
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Lady4 profile image
Lady4

Make sure you have copies of any correspondence, sometimes what they say to you is worded slightly different to the Dr. I got the diagnosis of FND after the PT picked it up on their correspondence. I was only told CRPS and go look it up. Completely oblivious to the fact its a symptom of FND, just went to relevant section, a functional movement disorder was mentioned on my letter not a functional neurological disorder, one that can be only diagnosed by a Neurologist (an appt which should have been referred 12 mths prior).

Good luck.

RLSSCARER profile image
RLSSCARER

Hi thereI think you may be suffering as a result of medication, maybe try restless legs syndrome group, the insomnia person get from augmentation, its DID Drug induced disease, movement disorders, you may find more support for rhe insomnia and better knowledge on how addiction vs Dysfunction, always needing more frugs is no way to live, if it induces unwanted side effects.

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