I just went to a chiropractor who calls himself A functional neurology specialist. Besides the fact that he told me it was all in my head. Even though I gave him medical papers, he then proceeded to tell me that I have an upside down tree in my body and the branches of the trees are causing me to have gastroparesis and it's all in my head. I walk with a Walker and evidently my weak Legs are also in my head. Why I was angry about this I don't know Because I expected it, but he wanted six thousand dollars to tell me.
AS IF
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AvacadoPits
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Here is my story, if this helps with how ridiculous and frustrating this diagnosis is. Instead of saying 'I dont know yet' they give us a label that makes other professionals think we are nuts. Most, and i mean 99.9 percent of MDs recognize FND as psychiatric and treat you as such.
You are truly your own best advocate, as for me, here is my story.
I was diagnosed with FND approx. two years ago, here is why. I presented with one sided weakness, progressive over a year, difficulty holding my tools (electrician), and some back/neck pain (Military Injuries).
I also had a slight resting tremor that was easily distracted (this is what they decided makes everything else FND) and balance struggles that didn't previously exist. (I was Helicopter Search and Rescue and in fantastic shape when I started to have trouble, along with no psychiatric issues, in fact, Life was fantastic). So I did an EMG, MRI, etc, it came back 'mostly normal' and poof just like that, they decided it is FND.
As for actual signs, two years ago, I had Hyperreflexia Bilateral in both legs, no other obvious neurological signs. I then slowly progressed over the next few years to needing a cane/walker to get around because of the one sided weakness. During that time I developed diagnosed neurological deficiencies, specifically, Dysphagia, Spasmodic Dysphonia, Positive Left Babinski, absent reflexes in right foot, tongue weakness/fasciculations by ENT w/ Nose Camera, over active bladder, and muscular dysfunction in diaphragm.
Someone in here tell me which part of that last bit sounds like FND, prettttttyyyyy please. Because I am pretty sure this is obvious misdiagnosis of progressive Bulbar Onset ALS, but I am not a neurologist. Oddly, only neurologist wants to disregard every other Dr and make their own diagnosis of FND. They have decided I should get a multidisciplinary eval, that was months ago, this will never happen.
I lost my voice several months ago, progressively, now permanently; it wasnt until then that Neurology decided maybe they should do some more workup.
The point is, I am likely going to be diagnosed with something much worse, and could have been treated, FND is a diagnosis that appears to be killing real people in real time. While it may not be all of the diagnosis, deep investigation appears to result in the majority being a misdiagnosis, why are neurologists deeming themselves a psych professional, when most of them are just actually people who didn't qualify for neurosurgery.
SO tell me FND pros, which piece of all those REAL Neurological Signs are FND...
When the ENT, after his camera and exam, diagnosed me with Spasmodic Dysphonia, Weak Toungue, and Tongue Fascicultations, he was awesome and reassured me this was not psychiatric and I have a real underlying disease that needs addressed. Sometimes it just takes one good Dr to refute the ideocracy of mythology that is neuro
This is why I wish those FND Feminists would roll up their sleeves and join this Hub so that they can answer questions like yours. I like the sound of that ENT
I think the price tag just to tell you what we all know and are constantly being informed that this disorder is caused by our brain not working. It was explained to me that our brain is like a computer where we have problems because the software is not speaking to the hard wear.
Perhaps the chiropractor needs to have this explained to him, and on doing so charge him $7000 for advising him on this.
I am speaking to you with my head 6 ft underground and my roots are in the clouds 🙃🙃🙃🙃
It's medical fraud.... but he uses the word neurology... not neurologist.... so i think that gets him off the hook. He did have my papers from the mayo clinic.... but he kept having to type things in his computer to see what they meant. So i explained it.... he accused me of reading about it ahead of time... ooohhhh how awful
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