FND and air pressure

[Lady4]

We recently came back from a wedding abroad and whilst fine the other side when we landed, when we arrived back in England, my son experienced "that falling feeling" and dizziness.

The first time I was made aware of this was when he screamed in the morning when I was downstairs, he also has ringing in the ears It isn't until later on in the day that the dizziness subsides and he can walk about.

I know that FND is linked to heightened senses but I wondered if anyone else has had these symptoms when returning home.

[210272]

Hi Lady4,

Please get him checked for MdDS. It's often flight triggered.

[Lady4 in reply to 210272]

Thanks for your reply, isn't that something you deal with too. Is it linked with FND?Going to Drs this afternoon, will this episode last long? We have now got extended family in Italy, which is a positive after recent losses/changes and would like to visit more often, will this occur after every flight?

Pre FND he never much liked the decent but never complained of any issues. I wondered if his heightened senses triggered this.

[210272 in reply to Lady4]

I had MdDS on and off for many years but am in remission now and am confident that this remission will stick. Some doctors (mostly men) think everyone with MdDS (mostly women) has FND but most people with MdDS wouldn't meet the criteria for a DSM dx. I've flown a lot and not been re triggered most times but we're all different and predicting the length of episodes is challenging. However in many cases it resolves after a few days or weeks so fingers crossed that happens for your son, if it is MdDS.

Sorry if I've asked this before and forgotten your answer, but what rationale were you/your son given for his FND dx in the first place?

[Lady4]

Hi, sorry yes, couldn't put hand on folder:

June 22: No rationale in letter re diagnosis of chronic pain or Regional Chronic Pain Syndrome (to me) from Paediatrician. Need to find copy letter to Drs and put with my file (pretty sure that one mentioned functional disorder).

Nov 22: Letter to GP from Paediatrician, suggests physio think likely to be a functional disorder.

Nov 22: Letter to GP from Physio re referral from Paeds with a "suspected suspicion" of functional disorder or chronic pain syndrome. Physio agreed with Paeds that "may be" due to FND. It was Physio that agreed FND should be investigated and agreed with me that a referral to Neuro should be made.

Oct 23: Although we eventually got Neuro appt, still nothing in writing and no "talking therapy" appt received nor probably even referred

Thats just our story ... Its so bad that proper diagnosis and the right referrals aren't made. As our lovely Physio said she wasn't qualified to make an FND diagnosis but she confirmed Paeds suspicion ...

[CRPSplus in reply to Lady4]

Hi Lady 4,

Wherever CRPS is diagnosed you can expect a raft of complications to go with it in the fullness of time (if not immediately). CRPS and FND are not easy bedfellows, so you need to be as informed as possible to help with ongoing condition management. Recommend you look at FND Hope website if not already done so.

[CRPSplus in reply to CRPSplus]

Sorry, getting ahead of myself there, obviously you have, we're here. How dumb is that?!

As far as info' for CRPS is concerned pls' take a look at Burning Nights website.

[Lady4 in reply to CRPSplus]

Thanks, I have had a look and bookmarked for future reference.

[Kosh1689]

Hello,

Air pressure can effect FND symptoms. It is called Paroreceptor Pressure Sensitivity. This is from FND Hope Support Group when discussing advanced research. There will not be any medical papers yet.

When the seasons change, my symptoms change. My solution is to move to another climate after my wife finishes school. In the mean time, more water and more sleep controls the symptoms. Have you son drink more water and sleep overall. Best wishes!

[Lady4 in reply to Kosh1689]

I googled it and found nothing, do you have the conversation link please.

[Lady4 in reply to Kosh1689]

Ps. Do you mean Baroreceptor?

[Kosh1689 in reply to Lady4]

Yes to Baroreceptor.

[Lady4]

Thanks, he didn't sleep well last night but I keep topping up pints of water and he is really good with his intake. Thought there was probably a connection, will research, thanks.

[Lady4]

Update: It turned out to be a combination of blocked sinuses following a cold and "air pressure" two flights.