Anxiety hit the roof today.

[Littlecook]

We have just got home from a lovely two day break but as soon as I got home my anxiety hit the roof, my son who was looking after our cat just followed me everywhere I know he is special needs but I couldn't cope with him today , I'm trying to calm down but feel that I could go made , I'm on the maximum dose I think my tablets may need changing.

[Lady4]

Maybe he just missed you.

Did you manage to have a break from your dizziness whilst away?

Plus curious, what tablets are you on?

There are specialists that deal with Vestibular Rehabilitation, see link below to find nearest advanced practitioner, the below is a search I did but just pop in your location and hopefully you will get a closer one.

vestibular.org/healthcare-d...

[Littlecook in reply to Lady4]

Thank you for your reply Yes maybe he did he's a good lad ,I'm not on any tablets anymore nothing worked, my neurologist didn't want me on tablets because can cause more problems with the brain, part of my brain isn't working correctly.

How are you keeping.

[Lady4 in reply to Littlecook]

I am okay, maybe look at rehabilitation. Juat because some senses aren't playing nicely doesn't mean to say you can't increase others to help with balance. Well thats what I have read anyway.

[Shimmyaway in reply to Lady4]

HI, Could you explain a little more from your react course how the distraction techniques/ wearing of weighted jackets affect the longer term likelihood of minimising the shaking/tremors/ (even the noises) that come with FMD even at times of rest? With thanks for your time.

[Lady4]

Hi there

The weighted vest helps your brain know where your body is in space, kinda grounds you and hopefully feel less disorientated/dizzy, ie extra sensory input. I guess you are re-training your brain.

I heard some people wear light ankle weights at night too.

Do you have constant shakes/tremors? And is that arms or legs. Intentional focus can make them worse (heightens the signal, neuron activity) and they now advise the GPs not to do this on first examination.

On several occasions when my son was suffering the symptoms and laid up, distractions stopped them. For example one day he realised he had his friends PE top and it was PE at school and as his focus had now shifted, he just got up, went about his day and even walked to school only to realise early finish. You can imagine my surprise to get a call at work telling me this esp as I left him at home for a few hours (able to shuffle into the bathroom next door). I also tried the technique lifting one leg and sure enough the other leg stopped spasming while I momentarily tried it.

Another example I heard about. was someone who struggled to get down stairs. She imagined that there were bugs on the stairs and she would squash them - that was her focus (think there was another sensory element too). It was a true story and took time to master and they would have started with one step etc or even on a flat but it was made into a playful event and as the suggestion was by the client this made it more personal and that meant she was more likely to practise at home, pretty sure I watched a video during a class and many of their success stories are on Instagram. They make it fun, ie walking while catching a ball to music.

I have been reading a book called "how emotions are made" (I need to read the mastering pain section next), I found it fascinating and could relate. I bought it several years back for my son following a Migrane Summit video (from recollection) but he flipped through a few pages and then it gathered dust. I made a lot of notes too in case it could help others and will post a summary when I finish it.

From an early age we learn from those around us, we learn to recognise a sound, a face, someones touch and we build it into concepts, mother, father and then the concepts widen to family etc. An emotion is described as a very strong match to a prediction (with several correct sensory predictions) from recollection.

Me thinking out load: If a certain noise makes you shake or tremor, could if be that particular noise is associated to something you have learn't to fear? And maybe by associating it with something pleasant, in time then the reaction lessens.

Re-active would probably suggest reducing the sensory input with noise cancelling earphones and asking yourself "do I need to be here" (where you are experiencing the noise). Hope that makes sense. Poss increasing another sensory input. For example, if traffic noise is a trigger, try focusing on counting how many blue cars you can see and have a rough pebble in your pocket that you can quickly touch to ground you and maybe stop a symptom. The options are endless and if one thing doesn't work, try something different. Layering seems to work best (2 or more, like in example above).