Hi guys
My husband took a dissociative seizure last week and it’s still unable to hold a conversation or read. I’m wondering if this is a “normal” recovery? Last week he couldn’t walk or talk but now he is home and can walk and answer questions with one word. He seems confused at times too.
HELLO SWEETHEART,PLEASE EXCUSE THE CAPS.
SO SORRY TO HEAR ABOUT YOUR HUBBY
PLEASE EXPLAIN WHAT A DISSOCIATIVE SEIZURE IS.
I HAVE HAD FND FOR MORE THAN 10 YEARS, FROM WHAT YOU DESCRIBE, ITS SIMILAR TO WHAT I HAD, COULD NOT TALK PROPERLY FOR QUITE A WHILE AFTERWARDS, BUT IT ALL CAME BACK EVENTUALLY, ALTHOUGH THE MEMORY IS ALWAYS A BIG PROBLEM, PLEASE TRY TO NOT WORRY TOO MUCH, EASY TO SAY BUT AM SURE THAT YOUR HUBBY WILL GET BETTER DAY BY DAY, THE BEST BET IS TO GET HIM ON THE RIGHT MEDICATION, PERHAPS EPILEPSY MEDICATION AND ANTI DEPRESSENTS, PLUS TABLETS FOR MUSCLE AND SLEEP, PLEASE MAKE SURE YOUR GP IS VERY GOOD, IF NOT HAVE A TANTRUM AND DEMAND ANOTHER!!-WE HAVE TO BE STRONG TO BE LISTENED TO.
I HOPE YOUR HUBBIE IS PROGRESSING BETTER NOW
TAKE CARE
LOVE TO YOU XX
HiHe won’t get epilepsy meds as he doesn’t have that diagnosis. I suppose we are still in early days but it’s just not nice.
Hi. I have dissociative seizures too and they do affect me for a while as well. They make it hard for me to talk and read and walk also but the longest that it lasts for me is about an hour because I become paralyzed and then I can do everything again besides walk because my walking is impaired. Anyway, also with mine the affects can come back the next day or next week so I will wake up with those side effects from it or it will just randomly happen during the day from my previous episode/seizure. Another thing that makes it hard for me to read and think is brain fog so that might be happening with your husband too. I hope you figure it out.
Yesterday afternoon he walking into the kitchen and I pointed to things and he was able to name them, same with the bathroom last night. It’s like his brain is frozen and is just defrosting a tiny bit at a time. He has been under a huge amount of stress and personal worry before the seizure so I wonder if the brain has just shut down for protection?
Yes I believe it is happening for protection. When my symptoms got worse with FND it was when I had so much stress and change going on in my life so my nervous system was freaking out by having seizures, brain fog, and especially a lot of tics whenever something stressful would happen or they would be triggered by certain people being near me I think to protect me from the hurt. It does take a while for your body to calm down and adjust and know what to protect you from and what is trying to help you. I wish your husband the best, just keep being patient with him and encourage him and don't guilt him or make him feel like something's wrong with him which I doubt you do. You're doing a great job, both of you.
So is FND the same thing as dissociative seizures? Sorry for my ignorance, I’m really wanting to learn more.
Yep, you’re on the right track. The seizures are usually the nervous system saying “I’m done and need a reset”. Managing stress levels is super important when managing these seizures.
Yeah, my gut feeling was that his body has just shut down for a rest. Huge amounts of personal life stress plus working with covid patients has taken its toll. I have been reading that it’s talking therapies that he needs so will be straight onto the phone in the morning to start the ball rolling.
Migraine seems to be associated with non epileptic seizures and can result in cog fog and word loss so it could be worth asking about that, as well as seeking other therapeutic measures. Great that you are there for your husband and I hope you and he see more improvement very soon. My Mum had epilepsy (petit mal) and was often wiped out for hours afterwards, even if she wasn't under a lot of unusual stress at the time. It took ages for her to get diagnosed with migraine but treatment for migraine did help a bit, even though the research was in its infancy at the time.
Well that’s him now walking and talking like nothing has happened. Memory poor but can remember things from years ago and was STUNNED when I told him yesterday about covid and lockdown!!! I have since found out what has been kept from me that’s caused him a huge amount of stress and I’m not shocked his brain switched off. He is like a new man after this event…
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