veterans and FND

greetings,

are there any other military veterans here with a diagnosis of FND?

thanks so much

[Daesin]

Army wife, army mom and soldier.

[Hidden in reply to Daesin]

awesome!

[Ratchet1964]

Yes, I spent 6years as a Comat Medic and I have been in a wheelchair now for 19 years, but only diagnosed with FND last year. Paul Barraclough

[Hidden in reply to Ratchet1964]

thank you for your service! how did your FND begin?

[210272]

I can't help wondering if all the veterans thought to have FND have PTSD + biomedical conditions that cause the symptoms often ascribed to FND.

[Hidden in reply to 210272]

how do you mean?

[210272]

I mean that a lot of symptoms currently ascribed to FND could be better explained by all sorts of recognised conditions but because FND is not a dx of exclusion it is all too easy for people with PTSD (a sane response to an insane situation) to pick up the secondary psychiatric diagnosis of FND, especially if their neuros have a weak understanding of audio-vestibular/neurovestibular conditions.

Hope you are safe and well, divedeep777. I see a lot of neuro-normals are developing ongoing TSD as a result of the current situation, which is not surprising. I feel lucky that I've already had to deal with medically-induced PTSD as a result of being misdiagnosed with FND and am good at social isolation anyway. Kinda nice to have company with the trauma stuff and the isolation stuff but I hope most of these people won't have to stay in our world for long and will make a good recovery.

[Hidden in reply to 210272]

what is TSD?

[210272]

Traumatic stress disorder. Just without the 'post' because it is ongoing.

Hope you are OK divedeep777 and are getting the further investigations you need

[Hidden in reply to 210272]

hope you are doing well also.

[210272 in reply to Hidden]

I am, thank you. Haven't been this well for years and am close to remission. The sunlight helps as does being used to social isolation. The physical isolation is hard but I'm in this for the long haul, so ...

[Hidden in reply to 210272]

remission from? sorry, sometimes my memory is not what it used to be.

[Hidden in reply to 210272]

remission from? sorry, sometimes my memory is not what it used to be.

[210272 in reply to Hidden]

Motion triggered Mal de Debarquement Syndrome. Often comes with a side order of migraine and can play havoc with my memory and other cognitive functions.

[Hidden in reply to 210272]

you have good family support?

[210272 in reply to Hidden]

Yes - my sister has MdDS too (mildly, thank heavens) so they are great. As is my ace primary care doc and my gem of a neurologist. And our researchers are awesome and then some

How about you? I know there are great Veterans' support groups and many advocates out there (I'm friends with one of them, who is also a rare conditions advocate) but I know how much it helps all of us to have family support too.

Blessings to you xx

[Hidden in reply to 210272]

yep, doing ok....just a new normal.

where from?

[210272 in reply to Hidden]

Glad to hear it Not sure what you mean about 'where from?' but hope we can clarify this soon xx

[Hidden in reply to 210272]

oh. just meant....are you from england?

[210272]

Yep. With Irish ancestry thrown in

[KarlBrighton]

My life has been like a warzone. There are many types of battlefield x