I wrote a post recently describing my diagnosis with FND. One question I meant to ask...
About 3 weeks ago I woke up with full body ache, felt like a fever, chills, IBS, no appetite, etc.. It lasted 4-5 days, really intense. I tested for Covid 2x (negative) and just assumed I had caught the flu from my students.
Fast forward to yesterday, and these symptoms are suddenly creeping back. Im achy, chills, no appetite, cant sleep... now on day 2. I will occasionally get an hour or so of relief mid day, which seems weird.
Am I giving FND too much credit to try and associate "flu-like" symptoms to brain misfirings? I'm trying to make sense of it, and can't believe my brain could create this scenario with an external catalyst....goodness I hope I'm overthinking it.
WTF
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sherwoodpg
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Thanks. You are correct, especially that fever symptom without actually registering a fever. I cannot realistically expect to deal with this every 3 weeks. How have you managed this ? Do you treat FND separate from Fibro?
Hi there😊I only have FND and for about a month had quite extreme nausea to the point that I was down to 2 meals a day and losing weight. I also had hot flashes all over my body several times a day (but no persistent fever). I find I get chilled easily now. But none of these symptoms have all appeared as a cluster that did not let up.
FND can be so confusing with so many symptoms and how they come and go! Maybe you did have the flu? I worry about what will happen if I do get genuinely sick…I think I will just think it’s another FND symptom!🤣. Good luck!
It’s difficult to separate the two conditions so i don’t even try it will drive you bonkers. Things are always worse from end of September to April May time each year . But we all know flares can happen anytime my only advice is look after yourself as much as you can pacing pacing pacing is essential eating healthily good sleep hygiene I don’t drink alcohol either due to the migraines boring I know but for me it’s better and to prevent some of the migraines that are hell to deal with. Avoid stress at all costs if possible and avoid people who are energy drainers. Also do some sort of exercise I find going for short walks really helps me a lot especially being around nature. I also do things I enjoy and that fulfil me and always work on what you can do and not what you can’t. I hardly take any medications at all now and I’m much better for it. I hope this helps good luck with your personal journey
I am on this EXACT same boat! I’ve been vomiting mostly bile for 14 days straight 5-10 times a day. I feel like shit. Cold chills followed by hot flashes and my blood pressure and body temp registering all over the board from low to high. I’ve lost 10 pounds in these 14 days from malnutrition and dehydration. Yet none of my doctors ever take me seriously because all they see is FND/anxiety/depression in my chart and think I’m batshit crazy. I went to the ER on day four of this onset, and all they did was a basic cbc and Urine drug test…if you are gonna take my urine, at least do a urine analysis too and don’t just write me off as a drug user. (Which I am not lol)
I finally got an approval to see a GI specialist for an endoscopy, hopefully this week. But this whole time I’m left trying to force myself into thinking my symptoms are FND and that I’m crazy and that I’m not really vomiting and I’m imagining it blah blah blah. It’s like, once you get diagnosed with FND, anything medically that goes wrong with you is just an FND symptom and gets pushed under the rug without proper diagnostic treatment. As a person who already doubts everything they think 24/7, FND has sure made even having the common cold a whole lot more mentally taxing in trying to figure out if it’s an actual cold and you need rest, or if it’s an FND symptom and you have to learn to push through it.
Hang in there! I know the mental bullshit game of trying to figure out FND symptom vs. other illness is worse than the actual symptoms themselves. I wish I could make it all better for all of us!
Yes the FND game sucks. I found out my nausea is gastroparesis. I did endoscopy and sonogram and it was normal so next was gastric emptying scan and I was diagnosed with gastroparesis. So not not only does my FND occasionally paralyze my arm and leg muscles but it’s also paralyzing my stomach muscles. Treatment is to adjust diet and eat less. Sucks
Hi I think once you have a diagnosis of fn d it's easy to put everything down to that as symptoms of fn d can be so random.Having said that it doesn't mean something else is not going on, if it persists get yourself checked out.I myself have been reluctant to seek medical advice when I probably should have because in the past they have just put things down to fnd.
Hi I was recently diagnosed with FND and then Fibromyalgia a couple of months later. I get similar aches etc as you described but they are more relevant to Fibromyalgia but with other symptoms as well. Hope you feel better soon 🥰
HI honey,Fully undestand what you are saying, BUT DONT FORGET, even though we have FND there are still flu and various viruses out there which we would anyway, something to think about?
We tend to forget that all them nasty bugs are still out there and we are, of course overcome by the covid, just something to tink about. In no way am i saying that you are feeling very ill, and send loads of hugs to you x
I get the chills, aches and pains, and fever feeling like if I was coming down with something when I have increased my physical activity. My body doesn’t like it when I move too much.
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