Has anyone undergone or had suggested Electroconclusive Therapy ( ECT). for FND thanks

[Sugartime]

FND

[Jofisher]

Absolutely not and I wouldn’t consider it either, why would that even be considered ? As this is a neurological condition.

[Sugartime in reply to Jofisher]

Exactly Neurological disorder which affects the brain, the specialist we have seen has said the brain needs a recharge just considering as nothing else has helped

[Jofisher in reply to Sugartime]

Have you considered going to see Professor Mark Edwards at St. George’s hospital in Tooting he’s so knowledgeable on FND I’m under him and he’s been great non judgmental kind and caring I wouldn’t see anyone else now. I wish you luck but I would hate you to have that drastic treatment without looking at other less invasive treatments. Try and find an FND specialist they are out there.

[Sugartime in reply to Jofisher]

I am in NZ and have been to several specialists but no one has helped how does he help you

[Jofisher in reply to Sugartime]

I think firstly by believing my symptoms are real and that I’m not pretending faking all these things have been said before by other neurologist. So being believed for me was the first thing then he listened to my case and showed empathy rather than being judgmental as so many others before him and then offering medication and offering to write letters if required to prove what was going on for me and offered other therapies at the hospital. He also agreed that my condition isn’t psychological and that all the cbt in the world wasn’t going to cure me. I can also contact him if I run into problems through his secretary so that helps you to feel that someone has your back and you don’t feel on your own with it. I’ve seen other neurologists who have caused a lot of upset by their hurtful comments and misdiagnosis.

[Sugartime in reply to Jofisher]

Thanks for that this FND is so confusing and debilitating, did anyone of your therapies assist with fatigue

[Jofisher]

Sorry here’s the other website she’s a doctor who has fibromyalgia as well check out the medical handouts there very good fmcmpd.org and fmawre.org. Regarding fatigue have you attended a pain management programme at your hospital as they talk a lot about pacing as we tend to boom and bust. So find out it they do a pain management course and see if you can do that. Fatigue is the worst thing to manage with pain you can take a tablet but there’s nothing really for the fatigue but make sure you get all the right blood checks done to make sure there’s nothing else underlying going on.

[Sugartime in reply to Jofisher]

Thanks

[Mic67]

There have been some trials of Transcranial Magnetic Stimulation for FND limb weakness. bmjopen.bmj.com/content/bmj...

[Remnant]

I’m considering asking for ECT too I feel like it will help but don’t know how to ask my GP

[Raziel48m in reply to Remnant]

Just make a telephone appointment and discuss why you feel it’s going to benefit you. I’ve seen patients improve with ECT, but it’s a big thing to decide to have. I’ve thought of having it and I’m also looking at ketamine treatment for depression etc. I’m just waiting on some information on who’s running the trials etc.