A whole new world: Today, I look at the... - Functional Neurol...

Functional Neurological Disorder - FND Hope

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A whole new world

Gud4Ewe profile image
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Today, I look at the world with new hope. 4 months ago, roughly, I began Cognitive therapy. I have gone to each session, spoken honestly, admitted faults and looked for ways to improve, just as anyone should in therapy.

Not much has come from it yet in that I am not changed in my condition, however, a very important change has occurred. Yesterday she told me she would like me to change neurologists to someone a bit more sympathetic or more exposed to FND. She had a doctor to recommend for me that already sends her several FND patients, and she feels he would be a better place for my care, to be heard with FND. She also recommended Gabapentin to help with some of the nerve pain in my legs and has asked me to bring her my FMLA paperwork, so that she may fill it out to help me protect my job around flair ups.

My current doctors have no real experience with it or are unwilling to take current research seriously citing that the data pool is still too small and these results are too early to base as fact yet.

Is my time in therapy over? No. This is a hell of a good start towards improving my quality of life and my general mobility. Onward I will continue to press.

Never stop being curious. Never stop asking questions and pushing for answers. If nobody answers you you are either asking the wrong questions or presenting them to the wrong people. In time, we will figure out what FND really is, together.

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LEEJUNFAN profile image
LEEJUNFAN

Great advice you've been given, and good on you for being positive.

So nice to hear this, considering all the negativity to FND from medical practioners.

We've, fortunately, got a sympathetic GP, and we've left FND leaflets in

the Practice waiting room.

Keep up the good fight!

Wishing you every success.

Warmest of wishes always.

Tony and Kim xx 👍 👍

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