I just had two hospitalization stays this month for all the FND symptoms. I had an attack out of no where, it came on suddenly and have never experienced anything like it. I currently have no reflexes in my feet, left sided numbness, tingles in my check and lip, and weakness to the point I can not use my feet.
The thing is this, for the last year I may have had early signs of what ever is going on. My vision has decreased over the year, I had an abnormal VGN saccades test, and intense nerve pain under my ribs that shoot down to my abdomen leaving it numb. More recently, my nerve study did come back a little abnormal.
My team of doctors has not taken these concerns into consideration as they have been focused on the new sudden symptoms leaving me physically impaired.
I was told chronic stress has given my this "FND" diagnosis, but I have not gone through any recent stress. Of course we have our every day stressors, but I manage stress well and I am in such a great place. I just graduated college and have enjoyed the last few months by taking a gap year completely for myself. There is no emotional distress and there has not been any. I have never been diagnosed with depression or anxiety. I also have great techniques to handle everyday stressors like using oils, yoga, friends, exercise, etc. I can not exercise right now because my symptoms are amplified. I was told physical therapy would "retrain" my brain and the more I walk would improve my symptoms. After any kind of movement, I am left with weaker limbs and tremors.
I am clueless because I am feel like my past history is not being validated. How do I advocate for myself? I see the movement disorder clinic at the end of this week. And I will get a second opinion from another team as well. If this is truly FND what causes this? Is FND just a given if doctors are not sure?
Thank you for your kind words. I went from being a college athlete to this. I am heart broken and hope to hear from you.