Hello wonderful people ❤

[Arlie_22]

Hi everyone Im Dana! Im new to this page/group. However have been living with my diagnosis which is non epileptic seizures, or also known as dissociative attacks for roughly 2 years. It was extremely hard at first, i FEARED LIFE! I learnt what real emotional struggle was, anxiety wasnt just a thing... it was something that consumed me. I've been dealing with extreme medical intervention since i was 11, I'm now 21 and am doing remarkably well. But I don't know anyone else like me, or anyone with similar illnesses. So happy to be here & look forward to not being alone 😊

[Katie-IBS]

Hi Dana, welcome to the group/page. I’m 22 years old and I’m currently experiencing involuntary movements on my left side ( mainly affecting my left arm/hand since May 2018. My attacks are that bad that I’m been off work since May 2018. I’m under a neurologist and he felt last time I saw him that my attacks were not epileptic seizures as they originally felt, as the way my involuntary movements present themselves. My neurologist said last time that my attacks could be non epileptic attacks. I feel myself that they are not 100% non epileptic attacks as since I’m seen my neurologist I have had new symptoms. Plus when I had my EEG last week I actually had a couple of involuntary movements attacks during the test, So we will see what’s what when I go to my next neurologist appointment.

Just wondered what are your symptoms or triggers?

P.s you are not alone as the is alot of people on here in the same boat as ourselves x

[Mat08]

Arlie so much energy in your words and that's a fantastic smile so if you ever fancy a chat but trust me I can chat i will be happy to respond and hopefully what's going on with me and what I am trying will inspire and hopefully wich is my entire aim make you bloody laugh 😂 big respect mat

[GentleFlower]

Hi Dana welcome to FND, I was diagnosed at 26 now I’m 28 with non epileptic seizures/dissociative seizures as my main symptom. I have been diagnosed for almost 2 years too and have also just joined this community app I didn’t realise it existed. I also suffer from other symptoms which followed the NEPS like mobility, motor weakness, chronic pain and chronic fatigue. I’m in the UK how about you?

Love GentleFlower🌹❤️

[Hidden]

Welcome Arlie! I had dissociative seizures for years. I have not had ONE since I started eating Cannabis edibles. I'm not saying it's a cure-all, but it IS a cure-most for most folks.

[Hidden in reply to Hidden]

I meant hello Dana - I blame it on the Cannabis. The only symptom I sometimes still experience, besides the muscle spasms and cramps, is confusion....but it actually helps me to enjoy that too, and not stress over it. Stress is why we have FND (supposedly), so we don't need more of that. CBD is also great. Let me know if you need any help on the subject