Diagnosis

[Nicola-8]

Hey, I was diagnosed with fnd last year. I was making good progress up until last month as I had a relapse in my condition. Im very confused as it was something very new, as I was paralyzed from the head down for 28 hours. My speech, body stopped working my eyes were just rolling I was able to hear and that's about it. The paramedics thought I was having a stroke as my face started to drop as well. This has terrified me. I woke up from that episode with new symptoms; tremmor, weekness in all four limps, lack of fine motor skills. Just has scared me. I have had episodes before but nothing to that extent.

I just wanted to make friends with people whom have the condition and similar struggles! As I'm finding things tough ATM 😁

Thank you

Nicola

[Bren10]

Hang on in there, Nicola, we're all in this together. Just to read what other people are coping with here helps so much as it can be a frightening and lonely experience.

I was rushed in to hospital with a suspected stroke at the beginning of 2017 - with all the symptoms you describe - and spent six months really struggling until finally getting a diagnosis of FND, but with no follow up from neurology or psychology. Have slowly made progress by 'pacing' but still have episodes when I relapse - usually when I try and be clever and do too much, then I struggle with right-sided weakness, numbness on the right side of my face, mouth dropping one side, difficulty with slurred speech, swallowing, brain 'fog', etc. etc. Unfortunately there is no 'quick fix' but it helps to read here how others are coping and pick up hints on how to cope. I find two or three days of doing absolutely nothing except sleeping and pottering in the garden, away from crowds and noise, helps to bring me back to balance - difficult when you have always been a 'busy' person.

Take good care of yourself, stay strong, and keep reading the posts. We'll eventually get answers, I'm sure....

[Nicola-8 in reply to Bren10]

Thank you Bren, yes your right we should learn from each other about coping strategies! See what works for you! I'm sorry that your still poorly, it can be very frustrating, slow and lonely at times. It's nice to hear there is support! When times are really tough!

Iv begun trying to learn to pace myself as I often forget my limits and crash and symptoms get worse.

Together we will learn to cope with this!

Thank you again, take care

Nicola

[princessabi]

I'm sorry you are having a ruff time. Don't give up hope. My daughter Abi is 9. She was having more than 700 sezures a day. My husband and I have done TONS of research based on her symptoms because the Dr's are useless. We found that the meds she was given increase serotonin (which can cause sezures) and we believe she already had a problem with increased serotonin. We took her off this med and demanded a blood test. We're waiting for the results but things have been much better. The point is you and your family should become very familiar with Google. I don't know what your symptoms are, but I will help you Stay Strong

[Nicola-8 in reply to princessabi]

Hey Princessabi,

I'm sorry to hear about your daughter! It must be awful 😢

I experience limp weekness, pain, fatigue, sensory sensations. So ATM I'm in a wheelchair and struggle to bere weight on my legs as they give way, since the recent episode I awoke that without the ability to write and slurred speech. I have been advised that in time and treatment those things will improve!

Thank you for your support! I'm here for you too, nice to support each other for coping strategies 😁

Take care.... Nicola x

[pickleweed]

I recommend the book Functional Neurologic Disorders, volume 139 of the Handbook of Clinical Neurology. The Kindle book can be listened to.