Is this fnd???? : Hi I have been unable... - Functional Neurol...

Functional Neurological Disorder - FND Hope

5,899 members3,164 posts

Is this fnd????

Legbrace74 profile image
6 Replies

Hi I have been unable to feel my right side from my twelfth rib all the way down to my toes inside and out eg can't feel my internal organs it has been like that for 5 years no change in all that time I have seen everyone you can think of even the Psychologist says I'm not suffering with stress or anxiety my neurologist says something has switched off in my brain and they don't know how to turn it back on. Since Christmas my left leg has gone numb from the knee down any help or anything you can think of would help

Written by
Legbrace74 profile image
Legbrace74
To view profiles and participate in discussions please or .
6 Replies
pickleweed profile image
pickleweed

I'm not sure of how to test for functional sensory disorders. If you can get your symptoms to show up as movement disorders, then it would be easier to diagnose FND. You say that your left leg has gone numb from the knee down. Have you had movement problems such as accidentally walking on the side of your foot, or injuring your foot or lower leg? Do you have problems with urinary or fecal incontinence? If you answer "No" to those previous questions, it is possible that part of your brain is receiving sensory input from your lower body, but your consciousness is not receiving that information. I don't know if that would mean that you have FND, though. One would also wonder if you have something wrong with your spinal cord below your 12th thoracic vertebra.

Legbrace74 profile image
Legbrace74 in reply topickleweed

Yes I do have problems with urinary and fecal incontinence I am always going over on my ankles. It's like walking on false legs. Had a MRI on spine doctor says it's fine but I did break my back when I was 16 have to use a leg brace on my right leg and ankle supports on both ankles

pickleweed profile image
pickleweed in reply toLegbrace74

For urinary and fecal incontinence, you could try Interstim or sacral nerve stimulation. Expensive transcranial magnetic stimulation, costing about $13,000, could be tried.

pickleweed profile image
pickleweed

Another thing you could try is the drug gabapentin (an inexpensive generic drug with a crazy dosing schedule) or the drug Lyrica (an expensive "scheduled" but fairly safe brand-name drug). You may say to yourself, "But aren't Lyrica and gabapentin pain relievers?" They often are prescribed as pain relievers, but some people, including myself, paradoxically have more pain (and therefore more sensation) on them. So you may gain sensation back by taking one of these drugs. Gabapentin causes diarrhea. Lyrica tends to cause constipation. You could try taking over-the-counter pain meds to see if they paradoxically increase sensation below your ribs, but you probably have already tried those medications inadvertently for something else. One thing to check for is whether you have more sensation below the ribs at certain times of the day/night (which may point towards FND).

Legbrace74 profile image
Legbrace74

I'm on 600mil of Gabapentin a day already

pickleweed profile image
pickleweed

I just read in Handbook of Clinical Neurology, volume 139, that using a TENS unit (transcutaneous electrical stimulation) on a high setting (so that you see the muscle twitching) can help bring sensation back.

Not what you're looking for?

You may also like...

FND and Mental Health

I’m confused about FND and Mental Health. Do you have Mental Health issues if you have FND? To my...

FND Diagnosis

Hi all, I am new to the forum and hoping to speak to others that have been diagnosed too. I’m...
RedmistAl profile image

Is it Meds or FND???

My ultimate question today is: Is my increase in issues due to new meds or just FND changing yet...
cgarff profile image

Could this be FND?

This issue going to be long! In August last year I had to have 2 colonic polyps removed. Obviously...
Giop profile image

Is it FND...

My husband had unusual symptoms at the end of March 2021, namely tingling/buzzing sensation in...

Moderation team

See all
FND_ profile image
FND_Administrator
hope4fnd profile image
hope4fndModerator
DNE92 profile image
DNE92Moderator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.