Scared to do anything

[Blue80]

Hi, thing's in general normal people's is perfectly fine. I have everything I want to say in my head to put down, but when it comes to it I go blank so here goes and it's a boring essay how I feel. Just going somewhere normal for others like shop's or a night out I don't want to in case something else goes wrong and I embarrass who I'm with and ruin their night shaking, stuttering slurred words no balance etc.. sounds like a good night to many without FND but horrible for me. I can't go out on my own in case I go paralysed again, scared to have bath on my own in case I go paralysed again, now I'm having new symptoms eye sight getting worse, pains in my head. I would rather stay at home as its my safe zone. And only been diagnosed with FND a year half ago but suffered with blackouts since 09 and other things far back as childhood they are working out, aswell as being epileptic.. Still hard to separate the both or even understand what FND is and why me?

[salfnd]

Hi Blue08 Im sorry this illness is making you feel so isolated. It really is a Cruel thing we are going through. I understand that you feel safe at home, as do i, but we have to not allow FND to Win and take total control of our life. Is there other things you can still do with friends that you enjoy maybe instead of going out at night, have a night in, order food, Watch some Dvds.. Or maybe have a walk around the shops or Park. Sorry i dont know how old you are , im guessing not that old lol... Think of ways you can still enjoy life with your friends and have Fun. Are you a member of any of our groups, or checked out our website Fndhope.org, you will get some good information on there about FND and it will help you understand more about FND. As for Why you, im sorry i cant answer that one because i think we all feel that at sometime or another, I know i did. I have just about come to terms with it now, I have Fibromyalgia as well so i just try my hardest to take day by day Minute by minute and just get through, i never plan anything no more cause you know it never works out, if i have to let people down because i not well then so be it, i cant feel guilty anymore cause thats not good for me.. I hope your be ok and find your way to cope, Always here to chat. Take care.. Sal xx