Emory conference

[Seaotter2020]

Sorry - posted the wrong link

fndhope.org/partners-treatm...

[nurmihusa]

Thank you for that!

[Rosered175]

Thank you for sharing that link.

As a patient who attended that conference, I agree in that they are focused on treatments. At the same time, I am incredulous at the lack of research or even interest in further examination or description of what constitutes a FND diagnosis. There is a base line assumption stemming from hippocrates' (I believe) definition of histeria. As an individual living in 2017, I am appalled.

Medicine is about research, exploration, and the patient. The journey of a person's illness starts with being able to define and understand what is happening to that individual. I did not see, hear, nor feel that interest or any action thereof, in that conference.

Presenting experimental treatments and testing patient populations cannot be accurately nor scientifically assessed until the population has been defined. I do not see a fail proof definition of FND and ALL of it's subsidiaries.

So, I look for someone who does have that interest and willingness. Until I find that, I cannot support efforts that are not scientifically founded.

[nurmihusa in reply to Rosered175]

What I understood was that there was a meeting in October of 2015 which got written up for the March 2017 article, "This meeting followed on from a closed invitation meeting in 2015 which has been written up as an open access article..."

[Seaotter2020 Volunteer FND Hope in reply to Rosered175]

All the more reason to join our scientific registry because we need answers NOW!!!!!!! Please sign up if you haven't . Our population representation is appalling. ( I don't mean you) . We can complain? But we don't take action? We are the only ones who are going to find the scientific evidence and we won't even study ourselves? The ME community took on their own research, the Aspergers community took on their own research. Guess what they have medication plans and are OUT of psychology. Sorry for the rant. I am frustrated.