I have fnd attack weather headache pain shaking and stumminģ for word it awful to have but worst for my parter she said I feel helpless I told her keep me safe
Fnd attack me every day: I have fnd... - Functional Neurol...
Fnd attack me every day
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Mine first started in August last year with three to four per day. I'm glad to tell you that with medication they began to get less and I also know what my triggers are. I now only have roughly one per week . Hang in there and take a look at neurosymptoms.com I used the stone therapy technique to start and think it helped too.
Snoopy50, I am so sorry your going through this. FND is such a crappy thing to go through. I myself don't have too many problems with headaches thank goodness, however I do have issues with uncontrollable movements, and speech issues. Not being able to find the words, let alone get them out is horrible. It really makes you think about what you take for granted when you could do things normally. Have you found any medical help at all? Neurologists, therapists (psycho and speech) as well as physio? Getting those kinds of help are important, and can help if you find the right people. Keep trying until you find the right fit. I know that can be a pain sometimes, I have gone through MANY myself throughout the last 8 years. I am also lucky that I have a therapists that will let me write things down or email her when I can't get words out. She has been amazing to let me take my time to work through this. Don't just stop at normal things either. Look for alternative treatments as well. you never know, something very weird can help.
I truly know the helpless feeling on my end, as well as my husbands and families end. We all wish there was something that I could or they could do to help me. And I totally agree, keep us safe is a huge thing. I myself am perfecting my gymnastics in bed, I do backbends, twists and turns, crunches etc.. but my dismount needs a little help. There have been many times where I have fallen out of my tall bed onto my head, and can't move until my husband comes to get me out of that position. All I can do is try to keep myself safe by putting pillows down below me, and laugh it off as much as I can.
Be safe, keep trying, look for help, and if you need to chat, I would love to be there for you.
Cheryl cgarff1@gmail.com