Understanding

[Louhope]

Hi all

I've recently been diginonsed. And I have no one who understands me. I'm looking for some friendly advice please 👍😆

[Lucy-15]

Welcome to the crazy world of FND....you will find lots of friendly people on here full of helpful tips too. Even though we all have different symptons.....maybe like you...Id never heard of this FND nearly  2 years ago now but am managing to adapt my life to try to 'pace' myself ( not an easy thing) but still working, mostly from home now, but found swimming helps me a lot me. 

Just tell us a bit more about you and your sympyons and I'm sure someone on here may be experiencing similar ones too. 

Remember your not alone tc and keep positive. Jane X 

[andyglasgow2016]

Hey, indeed welcome to the crazy life of FND 

As Lucy said , if you can give a bit of background Like

Job , life, age, circumstances which led to FND eg cold, or woke up unable to function, car crash etc 

Where you live and if your docs and consultants have been helpful 

And how the doctors diagnosed and how long it took

Chances are someone will be super close to your story

Feel free to leave out some stuff tho if too personal

B blessed

Andy

[Rachh8]

Here's couple good websites to help too... fndhope.org and neurosymptoms.org plus fnd hope has a good Facebook page too x

[Tewa]

Welcome to this site.  You will find lots of support, understanding and helpful suggestions. 

I know from my own experience and long journey before being diagnosed, that it helps to connect with others.

The websites suggested are very helpful too.

Sending positive thoughts.

[cgarff]

Fortunately, here you have tons of people who understand you, and what you are doing through.  As said before, we all have different symptoms, and many different things that have helped.  Hopefully you can find some good doctors where you are that will be willing to help.  I can be a huge struggle.  I myself have been trying to find the right ones for 7 1/2 years now, and 6 months ago found an amazing therapist, and just a week ago found a neurologist that is actually willing to look into this more and not willing to give up on me just because I was given this label.  My advice... Don't give up, keep trying, try your best to keep a positive attitude, because it can pull you down into depression if you let it.  Take it on as a challenge that can be beat, not something that can destroy you and your life as you know it.  Find things you can enjoy doing, take it easy and don't over do it.  Again don't give up, keep smiling, and know that you are not alone!  We are here to help each other out, because we are all in the same boat.  Best of luck, if you need to chat I am here, would love to know more about what your going through.  

[Borrow]

I have also just been diagnosed, I fell like I'm full of questions with few answers and with very little help offered from the neurologist, as he says I've had it for too long but undiagnosed. I'm lost! Help please

[Tewa in reply to Borrow]

Understand how you feel lost,confused and have so many unanswered questions. This diagnosis is all of that and more! Good you reached out to the people on this site, as they are so supportive, helpful and do understand.

Do research FND, ask questions, see what others are doing and trying to help themselves...I have found out that the drs have very little to offer. It is so frustrating to keep hitting walls, with no treatments that actually help, with no answers from drs, with very little understanding or support. To have a debilitating illness, with very little energy now being asked to do the work for yourself. Absurd, overwhelming and not empowering. I do hear you as I have been dealing with this since 2009. It is exhausting and so frustrating.

Sending you support. Please continue to reach out.

Tewa

[sunride]

Hi Louhope,

I have only recently been diagnosed with FND. This site has given me tons of amazing advice.

When I was first diagnosed the Neurologist was very rude towards me and was most unhelpful. However I have since had Neuro physiotherapy which is helping( be it slow but progress.)

I found it really difficult to deal with the lack of knowledge about FND and to add to the mix the lack of clear pathways to recovery. The one thing that kept going over and over in my mind was the when, If, why me?

Kind regards x