I am inventing a new word.. "Bed" ercise

I know it sounds funny, but I am inventing a new word that goes along with fnd sufferers.. Its called. "Bed"ercise.. Or exercise in bed. After the night I had last night, it totally fits. In the middle of the night, out of the blue my body felt it was time to exercise I guess, and started to spasm, seizing of all muscles head to toe, twist and turn, back bends, curling up, sit ups, shaking etc.. I got quite the work out. Today I am so exhausted and sore. And just feel numb. I truly hate this! I wish there was a magic pill to make it go away, but I guess there is something I have to learn in this life, and that is why I am going through this. My amazing therapist says I will most likely get worse before I get better, I just wish I was in the better end of this. Trying to keep my spirits up and be happy, but lately it has been tough. I am grateful to know that I am not alone in this, I greatly appreciate all of you, your comments, and ideas on this site. Bless you all for going through this trial. I hope that you can all find the answers you are looking for. Don't give up, keep trying, and we will be able to get through this!!!😊

4 Replies

  • Love and prayers. Know the feeling! Xx 😀👍

  • I understand and have experienced a degree of this. So sorry that your rest at night isn't "restful." Keep letting all know how you are and when you need more support. I will pray for you and send positive thoughts and energy too. And continue to pray for answers so that all of us can receive treatments that will give more relief and better quality of life.

    Love and Light,


  • Thank you johanna, we I've all got to find something that is going to help us. I pray that we all find it soon.

  • That's what we all need......help, support, understanding, respect..... and love.

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