Disordered Sensory Gating.

[Tewa]

I have read in the info about FND that Disordered Sensory Gating..too much incoming, bright lights, too much stimulation can cause brain crash. I have this. So far the only info I get on-line is this is a component with Mental illness, Autism Spectrum Disorder and other conditions more psychologically based. I do not fit into those categories. Does anyone have more info about DSG specific to FND?

[Kadaffy]

I have the same I believe...Too much sudden movement and sound cause my brain to freeze..It usually lasts about 2 hours and during this time it's hard to process any information in any way...Unfortunately I've never found a doctor that will listen and take me seriously even though it's totally disabling...I saw a psychiatrist once at emergency and he put me on all these screwed up meds...didn't help at all

[Tewa in reply to Kadaffy]

Thank you for your reply. I haven't discussed this with any docs as I am not wanting an adverse response. Have had enough of dismissive and skeptical attitudes.

I cannot multi-task as I could in the past. I have to go someplace where it is quiet and regroup.

I think because our brain circuity has gone awry, the stimulus response process is easily exacerbated by incoming; such as bright lights, too much noise, too much incoming stimulation of the Central Nervous System. Brain is on "overload' mode. Similar to the "startle response" of newborns, whose nervous systems are not fully developed and cannot assimilate/process incoming stimulation/information. I believe the research needs to focus on identifying how our brains have been impacted in order to develop effective treatments.

Johanna

[Seaotter2020 Volunteer FND Hope in reply to Tewa]

I had same issues after brain surgery to remove a tumor. The doctor said I used to be a T1 line and now I am AOL dial- up. It would trigger seizures. Finally after two years I had an adrenal crisis and they finally realized my pituitary gland was not working. I am on cortisol now and am slowly tolerating more and more stimulation. i recommend you get checked for that and B12. good luck - let me know!

[Tewa in reply to Seaotter2020]

Thank you for the information. I have been a sensitive person most of my life. This has become more of an issue as this FND has progressed.Will speak to my Primary Care Physician about pituitary function and B-12 levels. My adrenals were fried in 2003, I took an Adrenal Supplement and continued off and on since then. How was our pituitary glad levels checked?

Hope you a are doing better.

[Seaotter2020 Volunteer FND Hope in reply to Tewa]

I am so much better! have them do the saliva check . it is a cotton swab you can do at home 8 am and 10pm.. Make them prove you dont have it. if they just check your adrenals they will miss the pituitary gland.

best of luck .. let me know!

[Tewa in reply to Seaotter2020]

I am to ask for a saliva test for adrenals and pituitary? Can I get this test from my Primary Care Physician?

Did your test results give some helpful information? What has made you better?

Thanks for the information. Happy to hear that you are feeling better.

[Klw27]

I also have episodes where my brain function is somewhat disabled if there is too much stimulus (also lights and noise mostly or if I have to concentrate really hard on something) although not formerly diagnosed yet, my neurologist does suspect FND as developing post viral infection, (suspected meningitis ).

He has since done a 360 turnaround since my lumbar puncture came back with some abnormalities. I am currently waiting to be admitted to hospital for lots more diagnostic tests. Whether I have confirmed FND or something else is now yet to be confirmed but I certainly have the similar effects of too much stimulation. Namely my balance will go and I will be staggering, my ability to walk unaided as well as my speech which becomes slurred and I also at times cannot speak, the words just won't come out, I will also stutter too. I will keep an eye on this post and look out for more replies. Best regards.

[Tewa in reply to Klw27]

I have been inactive until recently....due to long flare-up and other issues. What did the lumbar puncture show?

[Tewa]

Thank you for your response. Yes, balance, cognitive, and other functions affected by sensory overload. Do hope your diagnostic tests will give some confirmation. Wishing you the best and also ....kind treatment by all staff while in the hospital. Please stand up for yourself, and don't allow any dismissive and disrespectful attitudes . So hard to be in the hospital where you are having to advocate for good treatment for self.

Take care,

Johanna