Need some one to talk to

[Toddp]

Hi im from a little town called PostFalls in Idaho USA I was diagnosed last month with. FND. It started after having a tooth pulled and and infection from it. Has any one has FND start after having an infection. Also I can't seem to find any one in USA with FND

[Rachh8]

No one seems to know for sure but I could of had mine start from an infection as I had lots of infections before I was ill but there's lots of other things that could have been like childhood trauma, severe stress, infection, operation etc also had. Check out fndhope.org and neurosymptoms.org also there's a helpful Facebook support group xx

[EnglishIslander FND Hope Volunteer]

Welcome. I actually passed through Post Falls a few years back on my wanderings in an RV

There are many, many people in the US with FND. I'd suggest you join the Facebook group where you'll find plenty of help and support, information and education. Go to the homepage of fndhope.org and click on the "Join Facebook group" button.

Many report having had infections before starting FND, amongst many other indicators. There is research being carried out and hopefully some specifics will result. Until then, there is plenty of therapies available when you know where to go.

Best wishes to you.

Oh, and you actually have people in Idaho with FND to

[cathys20]

Good Morning Todd, I am in WI, have had dystonia, and fnd type symptoms for 17 years. I cannot write a lot right now, but will get back to you soon. I am heading out to church. You can email me at [e-mail] if you would like and we can talk. Were actually not too terribly far from each other. Please feel free to read some of my other posts, it may help to get to know me a little. Will talk soon, God Bless, Cathy

[cgarff]

Hey todd, I am in salt lake city utah, there lots of us here, I personally think that doctors don't diagnose it So much here because they don't know about it. I have only had two doctors here in salt lake that seem to know what I am talking about. Don't give up, keep trying. My docs are here at the university of Utah. I'm here if you need to chat, I have had this for 7+ years now, but it took 3-4 to get a diagnosis. Mine started when I got a cold. But did have some childhood trauma that most likely brought it on. Who knows though. Best of luck

[FND_ Administrator Volunteer FND Hope]

Hi ToddP,

Idaho what a great state. FND Hope was founded and is based in Idaho. There are several other members from Idaho. Of course many others in states close by as well. FND is a newer term just being used in the states, so with time the US patient population will grow. Please feel free to email the founder [e-mail].

[Tewa]

Hi..I live in Virginia, moved back here after living in Montana, where I received horrible medical care. My FND, finally diagnosed just last week, started after exposure to a neuro-toxin bug spray. I do find that a dental extraction, any medical procedure such as a colonscopy will kick off an exacerbation as well as heat or temperature extremes.

Are you receiving supportive care form your drs?