Are patients safe in their care?

[FND_]

Karina has ME but is under the care of two doctors who have ordered this treatment that are psychiatrists Nils Balle Christensen and Per Fink from The Research Clinic for Functional Disorders. How are they treating their Functional Patients??

wp.me/pKrrB-390

[tmdk]

Hi I have an appointment with their research Facility for functional disorders in August. Emphasis on RESEARCH, we all know that at present there are given cures for a functional disorder, however it appears that if you can help early on, you can maybe find some work tools that help you through everydag. For some people they do get better and for others its either a fight to maintain the place they are at or come to terms with that things are not going to get better or maybe worse. After reading Karinas story I have concerns but my overriding

consideration is getting better or helping find work tools that work for me and possibly others.

Before you can start their clinical trials, you get evaluated, which takes between 3 and 5 hours. I have already been given information of the clinical trials they think i would be suitable for. Before any patient can start in a trial they have to give their consent. The trails last 3 months. Paitients can change the minds in the middle of a trial. They only have the facility to take about 500 patients a year and its estimated that over 300,000 Danish people have a functional disorder. I'm a new sufferer but if by doing a clinical trial I can help them understand how to help treat others, then I'm prepared to do that. Ive waited a year for this opportunity. I have read some things Dr Per Fink has written which have alarmed me made me think of psykiatry in its beginnings, not sure that he doesn't think "its all in our heads" but I have to believe that hes interrested in finding answers otherwise I can't see why he would be interested in running a research centre.

On their website their research has shown that functional sufferers have a hightened alarm system, feks pain, for a person without a functional disorder the brain would note discomfort/pain but in a functional sufferer hormon levels increase because the brain thinks its more serious. The hormon increase is simular to that of stress. So a functional sufferer is in a stress situation, which at some poiint the brain says stop and then we encounter the many different symptoms that come with a fuctional disorder.

BACK to Karina, the problem I can see with Karinas situation is that she has been sectioned under the mental health act, which means they can give her the treatment they believe is correct.without her consent.

Only Nils Balle Christensen and Per Fink can give an answer as to why she is receiving the type of therapy she is and why they are not listening to ME support group. I have been thinking about this alot last night after reading a significant amount from vaious sites.

From what I have seen and read, Karina has suffered with ME for several years and the last few years has become very sensitve to light, noise, etc and has been bed ridden for sometime before she was admitted.

I would hope that the facility has taken this into consideration, Karina's body through inactivity will have been weakened considerably. Muscles, tendons, ligaments, joints will all have been weakened and painful. Karina has been living in a quiet house, because her parents have stayed out of their home during the day time to eliminate noise levels for Karina. So I can fully understand why she feels like they are killing her. From being in a darkened room with Little noise and no mobility, she is being forced into another reality. She is being bombardet with different sensory impulses, at the same time being forced to be mobile which she hasn't been in long time. If they are treating Karina with a suspicion of another illness or that she has a functiona discorder. i would have thught they would still need to take Things very slowly, allowing Karina to progress or not as the case maybe and become less sensitve to light, noise etc. I have read that Karina symptoms have not been worsened by the treatment she is receiving.

I hope for Karina and her Familys sake that they soon will have some answers.

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