Prostate cancer charities

What happened to this mornings post on the different prostate cancer charities?

[cujoe]

Seems Admin over at APC took issue with the information in the original post Re: Malecare. (All taken directly from their tax filings available at their website?) Seems he has seen to it that the poster has been sanctioned on this site as well. ( An HU forum NOT even administered by him??)

As the saying goes, "He who makes the rules, Rules." Freedom of speech as Admin at HU defines it. Seems the same sort of thing is going on all social media sites these days. Manufacturing Consent just as Orwell predicted and Chomsky described it in action. Edward Bernays is smiling down on our Brave New World Order.

en.wikipedia.org/wiki/Edwar...

Be Well - Captain K9

[jdm3 in reply to cujoe]

Wow. I was interested in that post too as I begin to allocate for my year-end giving. I appreciated the information in the original post. Trying to support more cancer research and prostate cancer charities/support groups.

I did not realize Daryl had administrative jurisdiction on this forum (Fight Prostate Cancer). Even so, members should not be sanctioned for posting factual information (scientific or otherwise) and civil discourse. The fact that we are "monitored" at all is a little disturbing. These forums are self-selecting - we are adults with the common goal of learning and sharing about PCa. If anybody doesn't want to read a post, they don't have to. If anybody makes it nasty and personal, we can just ignore him/her.

Here's hoping we can all get along and have unsanctioned access to information with full transparency of process.

Happy holidays.

[cujoe in reply to jdm3]

Well said!

[cujoe in reply to cujoe]

PS As a personal note, I spent a considerable amount of time preparing my reply expanding on the information and suggestions made in the original post - and in sharing my rewarding personal experience in a hospital-affiliated congregate housing facility that sounded similar to one provided by one of the charities mentioned in a reply by another member. Several other posters also shared their opinions and experiences. Removing the post also removed those resources from the FPC community. That loss is one that seems completely out of line with the stated goals of this forum and HU in general. Such actions discourage people like me from wanting to take the time to prepare informative posts/replies to share with OUR community. (After all, WE the PATIENTS are the ones the forums are supposed to be for and WE are also the ones who need the resources and shared experiences that the forum can provide. I remind HU of what you say at your own website:

"We connect people with the same health conditions, where they can share experiences and get answers to questions about their chronic conditions and wellbeing needs - empowering people with knowledge for enhanced self-care." (emphasis added)

Your actions in this instance seem to be in direct conflict with that stated goal. Think about it HU . . . In the meantime, Be Well - Captain K9

[Hidden in reply to cujoe]

Good analysis as always cujoe. In this era of fake new and biased websites HU has previously provided what I thought were facts from direct sources. Very disturbing. The post was not negative but factual. If you or anyone can provide the original post, please message me or Lulu700 has my info.

[cujoe in reply to Hidden]

I am on a self-imposed extended sanction at APC and am (unfairly, in my estimation) prevented from initiating messaging with any members registered at APC (and maybe anywhere on HU). Thus is the unsupervised autonomous power that single person administration has over HU forums far and wide. I do not have a copy of what I posted in any of my replies to the original post. (altho' I wish I did, as they represented considerable time on my part.) If you initiate a message to me with a specific request, I'll do my best to get it to you. In the meantime, make sure you have your laptop camera taped over . . . Big Bro' may be watching you. Be Well - Captn K9

[Hidden in reply to cujoe]

This dust up aside, stay strong and continue to make a difference.

[Hidden in reply to cujoe]

May Be??

[Hidden in reply to Hidden]

I am sorry that I missed most of it . In a blink you are deleted . It’s the secret thought police .. peace brother .

[dougnola in reply to cujoe]

Correct. We collectively empower with knowledge so we can make decisions. That post, and my additional post on ACS were facts about those groups. I came here to learn from others’ knowledge and experiences to make decisions about my own prostate cancer life and to share knowledge where I had some.

To the gentle person that deleted a benign post, can you please repost? Thanks!!!

[NPfisherman in reply to dougnola]

I do not think that will happen...

Don Pescado

[NPfisherman in reply to cujoe]

Well, I am back after a days suspension and I guess they claim violation of part 6 of Terms of use--the only part I can figure is the following:

•be threatening, abuse or invade another’s privacy, or cause annoyance, inconvenience or needless anxiety;

-- Edited by HealthUnlocked Team according to our Community Guidelines and Terms of use --

Your reply was right on target....All the best, my man....

Don Pescado

[NPfisherman in reply to NPfisherman]

Edited again !!!.... Happy Holidays HU.... I wonder if I have my own personal assignee??... Interesting ...

Don Pescado

[Hidden in reply to NPfisherman]

Just lay low . Don’t reply to it .. we need you here brother . You are a great asset to hu .. and an exceptional human . I’m glad to know you . We all are . Hey to the missus. 🙏

[NPfisherman in reply to Hidden]

I appreciate what you stated... I am a great asset to HU and an exceptional human being...All of my brothers on these forums that I relate to are just like me--great assets and exceptional humans... While HU does not value my presence, my brothers do and that makes all the difference in the world to me... Say hello to Sharnoosh from Margaret and I... Much love...Staying low...

Don "deleted but not defeated" Pescado

[SuppWife in reply to NPfisherman]

And your presence is also valued by the “sisters” who love them. 👍

[NPfisherman in reply to SuppWife]

Thank you so much...it is an honor to at least be on this forum and continue to contribute and help others... This disease is a hell ship and if I can help a fellow crewman or crewwoman then I shall... Hoping all is well with you and yours...

Happy Holidays and many blessings upon you...

Fish

[SuppWife in reply to NPfisherman]

Amen and to you too ❤️

[Hidden]

Very disturbing. Immediately raises a red flag. Was the post on the charities expenses too close to home?

[Hidden in reply to Hidden]

Right up the ol culo ...

[Hidden in reply to Hidden]

🙈 🙉 🙊

[cujoe]

You both are right on target.

[Hidden]

Yah????? Ooops you’ve been deleted and banned .

[NPfisherman in reply to Hidden]

Deleted is my new middle name...

Don "Deleted" Pescado

[Hidden in reply to NPfisherman]

You’ve been labeled ..😂. So have I . Don’t fret none.

[cujoe in reply to NPfisherman]

"deleted but not defeated" has a very nice ring to it.

[NPfisherman in reply to cujoe]

Indeed...a poet but didn't know it....

Fish the NP Poet

[cujoe in reply to NPfisherman]

Or . . . maybe . . . NP the Fish Poet

[NPfisherman in reply to cujoe]

Or maybe NPfish the poet... any other combos??

Don P

[Hidden in reply to NPfisherman]

Fish & Chips - with a twist .....🐟

[NPfisherman in reply to Hidden]

My new handle...

[Hidden]

Hahahaha😂👏

[NPfisherman]

When one enters the arena, expect a fight to the death...

Don Pescado

[Hidden in reply to NPfisherman]

What are you “ Gladiator “?

[NPfisherman in reply to Hidden]

I loved Russell Crowe in that movie... I was also a fan of Spartacus series on STARZ network... nope, merely an analogy... I'm sure you figured it out... posting and replying is a risky business... LOL... lived to post/reply another day... for now at least...

Don "the deleted, but not defeated" Pescado

[Hidden]

Bravissimo Nal ... There is heaven and hell right here on earth . Trust in God not man . Shalom 🙏

[Hidden]

Road trip .

[NPfisherman]

Hi Nal,

There is no way I can give up my status here...The Admin over there never wanted me there...He prefers the Tall One, who could not ID a urinary tract infection on one post...when I pointed out that only tango65 had it right do you think that resulted in an invitation back??..No !!. He prefers a patient advocate to a medical professional...Who gets punished by taking that route.??..not me.. HU is all good with it as well... So be it....

I can not even get an answer from HU whether I would be sanctioned if I even mention that Organization that the Admin works for in a post with factual information... Now that is pretty twisted...

We are both in the Book of Life and that is all that really counts !!!

Shalom, brother

Fish