Looking for feedback to Low Dose Naltrexone meds !!

[Blublu112]

Hello fellow Fibro Sufferers.

After trying many methods of easing my Fibro of 6 long painful years, I'm very interested in trying Low Dose Naltrexone by contacting Dicksons in Glasgow.

I have spend a lot of money funding private health care to resolve the Fibro, money I cannot afford,

Has anyone got any positive actions by using Low Dose Naltrexone or am I about to waste more money.

Any advice would be greatly appreciated

Kind regards to you all.

[Hazel_Angelstar Administrator FMA UK Staff]

You can find previous discussions by using the Search at top of page

I was on ldn and it was life changing for me. Didn't take pain away but I described it as turning down the pain dial intensity from 10+ to a manageable level. It also contributed too be being able to return to work. Only reason I stopped taking it was because I started getting side effects once I started menopause

It doesn't work for everyone, but it's definitely worth giving it a try to see if it helps you

[Blublu112 in reply to Hazel_Angelstar]

Hi Hazel,Thank you for the speedy reply, I seem to be reading positive claims of LDN for various sites with only a small amount of negativity.

I'm pretty much convinced to the point I will complete the consultation form to precced, after ringing Dicksons Chemist I was informed it would be 3 weeks wait for the consultation as they are very busy.

I will look on this site for more info on LDN, I've just rejoined this group having issues logging in, I actually joined 5yrs ago but posted little as I was mainly reading up on the newly diagnosis given by the rheumatologist.

I can't believe the NHS attitude towards this health issue, I've worked really hard for forty years then end up with a syndrome that's not really recognised, pretty disappointed, I'm embarrassed to tell people I've been diagnosed with Fibromyalgia, as my GP said only two days ago while asking if he could prescribe LDN that the word Fibromyalgia was just an elimination name used in the NHS, he also didn't recognise LDN and had to look it up stating he could not prescribe it on the NHS.

He's going by the book,

Kind regards to you.

Ray.

[Hazel_Angelstar Administrator FMA UK Staff in reply to Blublu112]

Hi Ray the ldn research trust is also a good source of information.

GPs are reluctant to prescribe ldn on the NHS because it is off licence and they are not covered by their insurance. I was lucky that my GP was happy to write me a private prescription, so I only had to pay for the actual medication. Good luck and please let me know how you get on with it xxx

[Blublu112 in reply to Hazel_Angelstar]

Hi Hazel

Yes I've been looking at the information available on LDN research as well as backtracking on this forum for info & im now curious why a whole lot more people haven't tried it, I'm just filling in the appropriate details to get the ball rolling with Dicksons & club 158

The cost isn't out the of this earth.

But will be looking to cutting costs if it's working.

I was wondering if I should post my journey onto LDN on here explaining from the start through to explaining changes if any with LDN hopefully good positive posts.

Is that allowed to post these actions ?

I'm finding some great information on here to boost my spirit as I'm desperately determined to make some headway with my condition.

I've had a great busy full on life until this Fibro came on, I noticed I was aching in the morning and within a month I was staying in bed thinking I'd got flu, I was running my own manufacturing business when this happened and ended up shutting the company down that had took 20yrs to build up, that broke my heart and my employees.

Well best get back to my form filling,

Please let me know if it would be a good idea to post what I'm doing,

Thanks Hazel xxxxx

Lots of cuddles. Ray 👍🏻😊

[Anniebl24]

I would be very interested to hear how you get on. Thank you.

[Blublu112 in reply to Anniebl24]

Morning Annie,

I completed the online forms for the LDN and got a reply 10 minutes later asking for evidence of my illnessses which I promptly sent that was a 5.20pm yesterday, so just waiting for the appointment for the consultation.

I will be posting reports along the way because I'm sure lots of sufferers want to hear how it goes,

Take care

Ray. X