Only just found out I have this horrid condition so still getting my head round things & trying to be positive ( which i am finding really hard as I ferl so low). I have pain most of the time ( even lying in bed hurts) feel drained & nearly fall asleep through the day, but never stay asleep, & wake up every morning between 3 & 5.
My hands shake a lot & i get bad muscle spasams/ jerks/ twitches, really bad cramp in my feet/toes. I am 53 & usually a very active person with 9 Grandchildren, I care for my elderly dad & work as a residential practitioner( a very stressful job, and off sick now) Luckily I have a supportive husband & family & I am putting on a brave face.
Back at GP next week so hopefully some things will be put in place to help, my be change my antidepressant which I have been on for yrs, physiotherapy? Etc ,
Any advice would be good as I feel so lost
Kind regards Diane