Newly diagnosed : I have been diagnosed... - Fibromyalgia Acti...

Fibromyalgia Action UK

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Newly diagnosed

4 Replies

I have been diagnosed with fibromyalgia I'm struggling at work due to shift work very poor concentration have to see the works doctor to discuss my job role.

Can't afford not to work so very concerned for the future, any advice re Fibro and disability etc greatly appreciated?

Many thanks

4 Replies

Welcome to the forum you will find it a great help.

Its a bit early for many to be about yet. I have no experience of working with fibro so someone else will help you out.

If you go onto our mother site you will find a lot of useful info, The link is

fmauk.org

:)

in reply to

If you have a look at the next post below you you will find it a help

Malwimmy27 profile image
Malwimmy27

Hi Jytvc, I'm sorry you've been diagnosed with this horrible condition.

I had to leave work justo over a year ago. I was nursing in a secure environment which involved shift work too. I really do feel for you, colleagues don't understand the depths of the fatigue and don't believe you when you say things like wanting to lie on the floor and sleep because you're so fatigued and the floor looks really comfortable!

I found the brain fog one of the worst symptoms the deal with, particularly when dealing with medications and making decisions etc.

I have been fortunate in being awarded PIP , high component for living and mobility and also claim ESA , now in the Support Group. This just about covers the main house hold bills, thankfully my husband has been able to take on the mortgage.

I've just been awarded tier 2 NHS pension (Ill health). There are benefits out there to help. Go to the benefit inforation page on this site which will provide lots of information.

Good luck with every thing, please let us know how how you get on.

I hope you have as pain free a day as possible .

TheAuthor profile image
TheAuthor

Hi Hidden

Welcoem to the forum and it is wonderful to make your acquaintance. I am so genuinely sorry to read this and I have pasted you a link below to Janet, who is the FMA UK benefit adviser. It may be worth talking to her about your situation?

fmauk.org/rc-contact-list-s...

I want to sincerely wish you all the best of luck, and please take care of yourself.

All my hopes and dreams for you

Ken

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