Evening my wonderful spoonies =]
We'll I'm on day 4 of a pretty horrifically painfull and intense flare and an insomnia (zero sleep everynight) attack and after a catch up on here my mind was refreshed that I told a few of you guys interested in my clinic referral I'd update you on the progress... you've gotta love a bit of fibro fog haha.
So appointment 1 I was a little dubious since the letter had psychologist mentioned and I wasn't going to be told for the millionth time it's all in my head but I got a very nice surprise when it was the total opposite.
The specialist in question was a lovely woman, she asked me some personal things to get to know me, how I cope, the meds , if I blame things for fibro..the usual and said that I am a very admiral young lady to have a job and try to sort of push through rather than being hateful and getting depressed too much. She also said I have quite a good grip and understanding of the condition (thank you guys for the further broadening of my knowledge and an extra special shout out to bluemermaid for her amazing expertese) and is pretty sure she knows the path she wants me to take already. Such a nice thing to hear and she seemed genuinely empathetic and supportive...not common in the medical world with CFS and fibro hehe. On the appointment she gave me a diary to fill out for 2 weeks with active/resting, pain score and mood to fill to check my daily routine. (Remembering to fill in things is crazy hard with fibro fog right?)
2nd appointment 28th July she asked me how I got on with the diary as she knows this illness can make you quite forgetfull..wow right? We dissected and discussed it and she said she thinks I am doing to much , (although I feel I can't do anywhere near as much as I want most of the time) I need to have more resting time, cut my working hours and try to take it easy more. Asked me how I had been (flares etc) and then we discussed booking my 3rd appointment (group info session thing) to go over a few details. Forgot the exact stuff and it's all a bit new still and said she thinks I'm perfect for a pain management physio sort of 8 week program so intrigued about that.
I feel hopefull about the hole thing and comfortable how they are approaching things so when it develops more I'll be sure to update.
Sending you all peace, love and a restful night