I would like to here from anyone with fibro and having problems getting e s a on support group
fibro10: I would like to here from... - Fibromyalgia Acti...
fibro10
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fibro10
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hello i am not getting any benefits each time ive applied and even had atos around ended up crying at that too my claim was declined ive had to now apply for pip?? as i only live on 700 per month and my dad helps me live ie rent etc trouble is everytime i try and understand anything my brain goes into shutdown i cant think !
Hi fairytails
I am so sorry to read that you are also having such issues with getting benefits, I have pasted you a link below pertaining to PIP and I hope that it gives you an insight into how it works and that you will not be too nervous when you get assessed (however, if you have multiple medical backers i.e. GP, consultants and specialists you may not have to be assessed) as my wife was not assessed for her DLA because of medical intervention. This is always worth bearing in mind as if you inform any of your medical doctors and get them to issue statements on your behalf then you may get lucky?
You never said in your post what other benefits or worked you had, or what your circumstances were? So I have pasted you two other links pertaining to Income Support and Tax Credits, as you may be entitled to claim some extra monies if you are getting below the threshold of 'what the law says you need to live on'.
hmrc.gov.uk/taxcredits/star...
I genuinely hope that you find the links useful, and I want to wish you the best of luck with getting your PIP and any other monies that you can qualify for! It may be a good idea to contact your local CAB and ask them to clarify what you are eligible to claim?
All my hopes and dreams for you
Ken
Hi there your symptoms sound to me jus like fibro and that's one of my main fibro ones I have to rely on seeing what I was doing last to remember if I do a task and start something else I forget all about what I was doing and end up doing something else only to return and find my last task which I then remember. This can lead on to absence's that lead to pass outs which can be so tiring . The one thing I didn't do at the beginning was tell my doctor of all this happening to me cause I knew he would take me off the road with my car. well eventually I did . The reason I say this is because on the sight my benefit claim. It states that . Your
doctors are 2/3 of what can support your claim. Really hope this helps and also CAB are fantastic support for you personally. So hope this helps as Im fortunate to now be awarded support group had been trying for four years. It just my illness is kinda manageable but not repairable. I also have lower lumber nerve damage rigid flat feet that are painful this also means im crippling slowly. My Cab officer applied for a section 35 and 29 this is to say that although I can do things it would do me harm to have to continue. the section 29 asks them to find a job I could do. Well here's wishing your not as bad as me and that maybe you can work in the future if not good luck with your claim. I must say it has certainly relaxed me from the expectation's of an employers needs that I would not be able to meet. And give me just enough to live comfortably on love and blessings fibro friend.
Hi fibro10
I sincerely hope that you are feeling as pain as you possibly can be today? I am so sorry to read that you are having issues with getting on a support group. I do not actually claim this benefit myself but I have pasted you a couple of links pertaining to ESA that may be worth looking at.
gov.uk/employment-support-a...
nhs.uk/CarersDirect/moneyan...
I was at a MS group meeting the other week and they had a guest speaker from Disability Direct that help with sorting out such benefits and the speaker said the real problem is the narrowness of the questioning, and the result is if you give them too much information you can easily talk yourself out of a benefit or end up getting the wrong conclusion. He said he always advised just to stick to the issues at hand and do not deviate. As many people at the meeting had been put in the wrong category.
I was also wondering if you have applied for PIP? As this is a non-taxable benefit that you can claim regardless or whether you are in employment or not, and does not affect any other benefits you may receive? I have pasted you the PIP link below:
I genuinely hope that you can find some resolution and relief to your problem.
All my hopes and dreams for you
Ken
Big hugs sorry ur having as ruff a time as me keep ur chin up u will win in the end it unfortunately takes time x
Morning Ilovemy5boys that's a good handle. Now how are you today? Everyone on the site has Fibro as I am sure you know, varying degrees but masses of pain,
I think the answer and the thing we all havewmaining as active ss he to learn is how we pace ourselves. Gosh it is difficult the trick is try to do a little bit at a time if possible do not to over exert yourself. Deep breathing helps, dedication, why because Fibro dosen't go away so you attitude is terribly important./
My fog is winning and I am sorry I have lost the plot I need to sleep .
I will return when the fog has been temmed. xxxgins
