Hi im a newbyyy to the site had fybo for 5 yrs destroyed my life just exhisting im due to be reassesed may realy anxious about it plus just

[booohooo]

Lost my young brother only 48 put me rite back over

[Fibrofoggiest]

Hi booohooo , I am so so sorry for your loss, it must be so devastating at such a young age.

We are a very friendly forum, as well as the questions side we have a posts forum, which as well as giving out very good and supportive advice, also we try to have a bit of fun to lift our spirits, so do feel free to join in, if only as a diversion from your sadness at the moment.

There is also a lot of extremely good advice on our website fibroaction.org which answers lots and lots of questions and gives links to support groups in your area.

The stress of losing your dear brother may well have triggered a flare for you, I hope you have spoken with your doctor and that you are getting enough backup from him/her. Also the prospect of being reassessed must put a considerable strain on you which you just don't need at the moment. I am wondering if you approached your local jobcentre and made them aware of your present situation, maybe they could reschedule the assessment until you have got over mourning the loss of your brother.

Do feel free to come here and ask for support as much as you need to, we will all do our very best to help, I'm sure.

I am sending lots of positive healing vibes to you

Foggy x

[booohooo]

Thanks for your message xx

[TheAuthor]

Hi booohooo

I sincerely hope that you are feeling as well as you possibly can be today? Firstly, I would like to sincerely welcome you to the forum, and I genuinely hope that you find it as useful as I do.

I am so sorry to read that you have got this horrid illness. I am also so sorry to read that you have lost your brother, and I can really understand that this has affected both your physical and your emotional well-being.

I was wondering what medications you were taking for your Fibro? Do you attend any clinics such as Rheumatology or Pain Management Clinic?

I sincerely hope that your assessment goes really well for you and that you get your desired outcome. Please keep us all up to date with how you are getting on.

All my hopes and dreams for you

Ken

[booohooo]

Oxycodone duloxetine

[booohooo]

Pain clinic say cant help me anymore ken xx

[TheAuthor in reply to booohooo]

Hi booolooo

I am so sorry to read that your pain clinic say that they can't help you anymore! I was wondering if you have a good GP that you could approach and see if there is anything that they can do at your local surgery?

Take care

Ken

[Ginsing]

Morning Boo hoo I am so sorry that you have lost your brother I am sending you a virtual hug.

Time is a great healer and the emotions you have at the moment will gradually fade but your memories will last forever.

The Fibro is horrendous I know as does every one here you will find the site very useful.

Do take a look at our mother site fibroaction.org and of course the Healthunlocked page as well.

As my friends have suggested you may be having a major flare brought on by the death of your brother so perhaps this is the time to relax as much as you can - feet up snooze or watch tele - just do nothing. Your body is telling you to stop so stop go and be reassessed get your meds checked and keep chatting to us lot There is always someone here!

[booohooo]

Thanks gins its so lovely being able to chat to people who actually understand were yr comin from xx

[booohooo]

Iv had no support from no 1 my sister does my hed in wen I av moan shes always worse she asnt got fybo by the way

[booohooo]

Iv aged 10 yrs over time bags under eyes with not sleepin I also suffer depression anxiety

[Ginsing]

I am not surprised BooHoo life can be so cruel. I look in the mirror some times and I wonder wy the bags under my eyes are larger then my eyes- lol - just have to gather your self up and get on with the day.

You take care xgins

[Hidden]

Welcome to the site I am sure that having someone to talk to will help We are pretty good listeners, will help with advice and I hope make you smile, hugs sue xx

[gracesgrandma]

Hi BoooHooo when I say I understand I really mean it. I am 47 am just waiting for an answer to my ESA50 that I put in 4 weeks ago. Have had fibro and agoraphobia since my early teens. And the real strangest and saddest thing I have recently lost my younger brother very unexpectedly. I hope they go lenient because I don't have the strength at the minute to cope with an appeal. I really hope you find something that helps to pull you through each day xx

[jillylin]

Hi,

welcome. You'll find us a friendly and supportive bunch.

I am really sorry you have lost your brother . It's never easy and nothing anyone says really eases the pain we just learn to cope better. I have been a bereavement supporter for over 13 years now so please let me know if I can help in any way.

Hugs

Jillyxx

[Julie63]

Hi boohoo, I just wanted to give u a message to let u know I am thinking of u during such a difficult time. As i said to frantic, i can only imagine how devastating it must be to lose a loved one. Big hugs and loving thoughts to you my friend, Julie xxx

[abby100]

I'm across the "Pond" an American, I've dealt with FMS since I was in my 40's when it was only a syndrome or all in your head. The first thing I will tell you are the drugs are worst than the auto immune it truly is. I will soon be 66 and age adds it's own aches and pains for Arthritis and those drugs are bad too. Most FMS patients 80% are women. Most also have Hypothyroidism which effects your muscles. Your Thyroid controls every cell and gland in your body if it is not running right, you have other health issues, leave it untreated or under treated and you have bigger troubles. Do NOT trust a primary care to do the testing, find a ENDOCRINOLOGIST, they have much more training in it. Look up your drugs, note the side effects against the way you are feeling. They prescribe 3 main drugs in the US for FMS, LYRICA which is actually a Epilepsy drug, tons of side effects. Xanax or Cymbalta both mind altering drugs that fog the brain and cause fatigue. I personally use 10 MG Valium twice a day. It brings the FMS muscle pain down to where you can handle it better, it also clears up the Brain Fog. Any thing over that amount can be addictive. Xanax and Cymbalta are addictive. As is Lyrica. all have fatigue and muscle pain side effects. Stress does upset your FMS apple cart, but drugs are not the way to relieve it. We are quickly headed toward the single provider health system you have, unless you are RICH and can afford to pay for better health care.

Grief does a number on FMS, and "Seasonal Grief Disorder" which is not recognized is quite similar to PTSD our Military suffer from to long in combat. While the hard part of grieving is over for most in a few months to a year, there are times of the year like for us in the USA is Thanksgiving -Christmas because you are missing those people out of your lives. And the dates of their deaths and Birthdays, you notice more depression. Take the time to grieve you need, women grieve different than men. I bring this knowledge from a long personal history. I buried my 2nd child who lived 33 days when I was 22, lost my dad in the 80's, my 16 yr old was murdered by a sociopath in '89, lost my mom in the mid 90's and my husband in '04. Everyone thinks you can turn off grief in a month. Does NOT HAPPEN! Grief has no time table.

[loppyloo61]

Hi there Boohoo

Welcome to this wonderful Site. So sorry to hear about the loss of your brother. That in itself is enough to send you into a "Flare-up".

I am not surprised you are suffering with anxiety and depression, alongside the Fibro. I hav"nt been a Member very long myself, everybody are such a friendly, supportive bunch of people. I also suffer with anxiety and depression, I have had tremendous support, kindness, empathy via the Members.

As we all suffer from the same thing, we can identify with each other and understand, like no-one else can.

I have had ME/CFS/Fibro (plus lots of other ailments) for 20+ years, I have learnt more about Fibro on this Site thanks to all the Members,than I have in all the years I have had Fibro! Those who take time out, care and compassion to answer any issues/difficulties you may be experiencing.

I can understand/identify when you say Fibro has destroyed your life, I feel the same, as if it has "stolen" you life, as you knew it before!

Also understand where you are coming from when you say you feel you are "Existing", I have been House-bound for the past 3 years, live in P.J"s and the only time I get dressed or go out is to Hospital Appointments!

Personally I think this is a wonderful Site, I have gained so much knowledge/understanding, made friends, even had a laugh in excruciating pain!!

I can"t thank everyone enough for all the support and kindness, shown to me and genuinely hope you get as much out of it as I do!

Look forward to hearing from you again. Take Care.

Sending you positive healing energies

God bless, Betty Baby X

[booohooo]

Tanks betty baby im just like u in my pjs 24 7 unless drs appt wens the sun gonna shine for us boo hooxx